Context
Engaging youth as partners in academic research projects offers many benefits for the youth and the research team. However, it is not always clear to researchers how to engage youth effectively to optimize the experience and maximize the impact.
Objective
This article provides practical recommendations to help researchers engage youth in meaningful ways in academic research, from initial planning to project completion. These general recommendations can be applied to all types of research methodologies, from community action-based research to highly technical designs.
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TEAM MEMBERS:
Lisa HawkeJacqueline RelihanJoshua MillerEmma McCannJessica RongKarleigh DarnaySamantha DochertyGloria ChaimJoanna Henderson
A study in South Africa shed light on a set of factors, specific to this country, that compel South African scientists towards public engagement. It highlights the importance of history, politics, culture and socio-economic conditions in influencing scientists' willingness to engage with lay audiences. These factors have largely been overlooked in studies of scientists' public communication behaviours.
In October 2017, the PBS NewsHour team produced a week and a half of opioid-related content, including several online explainers, which presented the opportunity for a natural experiment for the Experiments in Transmedia project.
Knology (formerly New Knowledge Organization Ltd.) conducted a two-wave research study to advance understanding of the youth audience’s knowledge and news consumption on the topic.
The first wave of the study, conducted in September 2017, provides a baseline. The content aired in October 2017, and the second wave of the study, conducted in November 2017, asked a
This paper deals with the journalistic coverage of biologically active compounds presented as promising drugs in Brazil. The sample consists of 214 journalistic stories on 40 compounds published in two daily newspapers and a monthly science magazine from January 1990 to December 2016. After 27 years, although journalists and scientists had claimed that all compounds would become drugs in a few years, only two completed the evaluation tests and were approved for commercialisation. The paper provides a series of strategies to build a more analytical view on drug research and development.
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TEAM MEMBERS:
Carlos Henrique FioravantiCésar Maschio Fioravanti
This application requests support to enable a team of experienced science educators and biomedical and behavioral health network scientists to develop and implement the Worlds of Connections curriculum. Most middle school students are familiar with patient care-related health careers (e.g., nurses, dentists, surgeons), but few know about emerging careers in network science that can be leveraged to improve population health. This innovative and research-based science program is strategically designed to increase awareness of, understanding of, and interest in the important role of network science for health. This project will design learning activities that incite interest in network science applications to biomedical and public health research. The long- term goal is to enhance the diversity of the bio-behavioral and biomedical workforce by increasing interest in network science among members of underrepresented minority communities and to promote public understanding of the benefits of NIH-funded research for public health. The goal of this application is to identify and create resources that will overcome barriers to network science uptake among underserved minority middle school youth. The central hypothesis is that the technology-rich field of network science will attract segments of today’s youth who remain uninterested in conventional, bio-centric health fields. Project activities are designed to improve understanding of how informal STEM experiences with network science in health research can increase STEM identities, STEM possible selves, and STEM career aspirations among youth from groups historically underrepresented in STEM disciplines at the center of health science research (Aim 1) and create emerging media resources via augmented reality technologies to stimulate broad interest in and understanding of the role of network science in biomedical and public health research (Aim 2). A team led by University of Nebraska-Lincoln sociologists will partner with the University of Nebraska at Omaha; state museums; centers for math, science, and emerging media arts; NIH-funded network scientists; educators; community learning centers at local public schools; learning researchers; undergraduates; software professionals; artists; augmented reality professionals; storytellers; and evaluation experts to accomplish these goals and ensure out of school learning will reinforce Next Generation Science Standards. The Worlds of Connections project is expected to impact 35,250 youth and 20,570 educators in Lincoln and Omaha, Nebraska by: adding network science modules to ongoing 6th-8th-grade afterschool STEM clubs in community learning centers; adding network science for health resources to a summer graduate course on “activating youth STEM identities” for sixth to twelfth grade STEM teachers; connecting teachers with local network scientists; creating free, downloadable, high-quality emerging media arts-enhanced stories; and publishing peer-reviewed research on the potential of network science to attract youth to health careers. Coupled with the dissemination plan, the project design and activities will be replicable, allowing this project to serve as a model to guide other projects in STEM communication.
PUBLIC HEALTH RELEVANCE:
The lack of public understanding about the role of network science in the basic biological and social health sciences limits career options and support for historically underrepresented groups whose diverse viewpoints and questions will be needed to solve the next generation of health problems. The Worlds of Connections project will combine network science, social science, learning research, biology, computer science, mathematics, emerging media arts, and informal science learning expertise to build a series of monitored and evaluated dissemination experiments for middle school science education in high poverty schools. Broad dissemination of the curriculum and project impacts will employ virtual reality technologies to bring new and younger publics into health-related STEM careers.
A report following the 2016 Environmental Health Summit recommended engaging citizens in creating their own knowledge and solutions, thus ensuring that their concerns are adequately addressed and promoting sustainability of community projects. Indeed, citizen science has the potential to initiate a cascade of events with a positive ripple effect that includes a more diverse future STEM and biomedical workforce. This SEPA proposal involves the establishment of WE ENGAGE – an informal, citizen science-based, environmental health experiential learning program designed in partnership with and for under resourced communities struggling with health and environmental health challenges. Its purpose is to actively engage and build the citizen science capacity of citizens living in a single cluster of three contiguous under resourced, minority Cincinnati neighborhoods where generational challenges continue to plague residents despite the presence of established academic-community partnerships. Our hypothesis is that community-informed, experiential learning opportunities outside of the classroom that are structured, multi-generational, and story-based will encourage a) the active asking, discussion about, and answering of relevant complex health and environmental questions so that individuals and communities can plan action steps to make better health choices and pursue healthier environments, and b) greater interest and confidence in pursuing formal biomedical/STEM education and STEM careers. Our program has three specific aims: 1) We will co-create tailored story- based (graphic novel style) STEM education materials with a community advisory board and offer informal STEM education and research training to our target communities; 2) we will facilitate the application of scientific inquiry skills to improve health via community-led health fairs that use an innovative electronic health passport platform to collect data and through facilitated community discussions of health fair data to generate motivating stories to share; and 3) we will facilitate the application of scientific inquiry skills to foster community pride and activism in promoting healthier/safer built environments via walking environmental assessments. As in aim 2, facilitated discussions will be held to spur future community based participatory research studies and interventions. Critical to our success is the concept of storytelling. Storytelling is a foundation of the human experience. A key purpose of storytelling is not just understanding the world, but positively transforming it. It is a common language. Bringing together STEM concepts in the form of a story increases their appeal and meaning. Later, the very process of community data collection gives individuals a voice. In a data story, hundreds to millions of voices can be distilled into a single narrative that can help community members probe important underlying associations and get to the root causes of complicated health issues relevant to their communities. Through place based, understandable, motivating data stories, the community’s collective voice is clearer—leading to relevant and viable actions that can be decided and taken together. From preventing chronic disease, to nurturing healthier environments, to encouraging STEM education — stories have unlimited potential.
Public Health Relevance Statement:
Narrative WE ENGAGE is an informal citizen science-based, experiential learning program designed in partnership with and for middle schoolers to adults living in under resourced minority communities. Using the power of data collection and storytelling, its purpose is to actively engage citizens in STEM/research education and training to encourage a more diverse future workforce and to sustainably build local capacity to ask and answer complex health and environmental questions relevant to their communities. Further, by engaging citizens and giving them a more equitable stake in the research process, they are better able to discover their own solutions.
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TEAM MEMBERS:
Melinda Sue ButschkovacicSusan Ann Hershberger
Twin Cities PBS BRAINedu: A Window into the Brain/Una ventana al cerebro, is a national English/Spanish informal education project providing culturally competent programming and media resources about the brain’s structure and function to Hispanic middle school students and their families. The project responds to the need to eliminate proven barriers to Hispanic students’ STEM/neuroscience education, increase Hispanic participation in neuroscience and mental health careers and increase Hispanic utilization of mental health resources.
The program’s goals are to engage Hispanic learners and families by
empowering informalSTEM educators to provide culturally competent activities about the brain’s structure and function;
demonstrating neuroscience and mental health career options; and
reducing mental health stigma, thus increasing help-seeking behavior.
The hypothesis underpinning BRAINedu’s four-year project plan is that participating Hispanic youth and families will be able to explain how the brain works and describe specific brain disorders; demonstrate a higher level of interest of neuroscience and mental health careers and be more willing to openly discuss and seek support for brain disorders and mental health conditions.
To achieve program goals, Twin Cities PBS (TPT) will leverage existing partnerships with Hispanic-serving youth educational organizations to provide culturally competent learning opportunities about brain health to Hispanic students and families. TPT will partner with neuroscience and mental health professionals, cultural competency experts and Hispanic-serving informal STEM educators to complete the following objectives:
Develop bilingual educational resources for multigenerational audiences;
Provide professional development around neuroscience education to informal educators, empowering them to implement programming with Hispanic youth and families, and
Develop role model video profiles of Hispanic neuroscience professionals, and help partner organizations produce autobiographical student videos.
We will employ rigorous evaluation strategies to measure the project’s impact on Hispanic participants: a) understanding of neuroscience and brain health, particularly around disorders that disproportionately affect the Hispanic community; b) motivation to pursue neuroscience or mental health career paths; and c) mental health literacy and help-seeking behavior. The project will directly reach 72 Hispanic-serving informal STEM educators and public health professionals, and 200 children and 400 parents in underserved urban, suburban and rural communities nationwide.
This NSF INCUDES Design and Development Launch Pilot will increase the recruitment, retention, and matriculation of racial and ethnic minorities in STEM Ph.D. programs contributing to hazards and disaster research. Increasing STEM focused minorities on hazards mitigation, and disaster research areas will benefit society and contribute to the achievements of specific, desired societal outcomes following disasters. The Minority SURGE Capacity in Disasters (SURGE) launch pilot will provide the empirical research to identify substantial ways to increase the underrepresentation of minorities in STEM disciplines interested in hazards mitigation and disaster research. Increasing the involvement of qualified minorities will help solve the broader vulnerability concerns in these communities and help advance the body of knowledge through the diversity of thought and creative problem solving in scholarship and practice. Utilizing workshops and a multifaceted mentorship program SURGE creates a new model that addresses the diversity concerns in both STEM and disaster fields, and make American communities more resilient following natural disasters. This project will be of interest to policymakers, educators and the general public.
The Minority SURGE Capacity in Disasters (SURGE) NSF INCLUDES Design and Development Launch Pilot will enhance the social capital of racial and ethnic minority communities by increasing their networks, connections, and access to disaster management decision-making among members of their community from STEM fields. The four-fold goals of SURGE are to: (1) increase the number of minority graduate researchers in STEM fields with a disaster focus; (2) develop and guide well-trained, qualified disaster scholars from STEM fields; (3) provide academic and professional mentorship for next generation minority STEM scholars in hazards mitigation and disaster research; and (4) develop professional and research opportunities that involve outreach and problem solving for vulnerable communities in the U.S. The SURGE project is organized as a lead-organization network through the University of Nebraska at Omaha and includes community partners. As a pilot project, SURGE participation is limited to graduate students from research-intensive universities across the country. Each student will attend workshops and training programs developed by the project leads. SURGE investigators will conduct project evaluation and assessment of their workshops, training, and mentorship projects. Results from evaluations and assessments will be presented at STEM and disaster-related conferences and published in peer-reviewed academic journals.
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TEAM MEMBERS:
DeeDee BennettLori PeekTerri NortonHans Louis-Charles
Dr. Ann Chester, Director of the Health Sciences and Technology Academy (HSTA) in West Virginia was looking for professional researchers interested in working with HSTA's high school-aged participants through community-based participatory research (CBPR) projects. Dr. Alicia Zbehlik, with the Dartmouth Institute for Health Policy & Clinical Practice in New Hampshire, needed to further her research in knee osteoarthritis to support a pilot intervention in her target population. The two met, saw potential benefits to both organizations in forming a partnership, and agreed to undertake a one-year
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TEAM MEMBERS:
Paul Luis SicilianoBethany L. HornbeckSara HanksSummer L. KuhnAlicia J. ZbehlikAnn L. Chester
Cities and communities in the U.S. and around the world are entering a new era of transformational change, in which their inhabitants and the surrounding built and natural environments are increasingly connected by smart technologies, leading to new opportunities for innovation, improved services, and enhanced quality of life. The Smart and Connected Communities (SCC) program supports strongly interdisciplinary, integrative research and research capacity-building activities that will improve understanding of smart and connected communities and lead to discoveries that enable sustainable change to enhance community functioning. This project is a Research Coordination Network (RCN) that focuses on achieving SCC for medium/small size, remote, and rural communities through a polycentric (multiple centers) integrated policy, design, and technology approach. The communities served by the RCN have higher barriers to information, resources, and services than larger urban communities. To reduce this gap, the PIs propose to develop need-based R&D pipelines to select solutions with the highest potential impacts to the communities. Instead of trying to connect under-connected communities to nearby large cities, this proposal aims to develop economic opportunities within the communities themselves. This topic aligns well with the vision of the SCC program, and the proposed RCN consists of a diverse group of researchers, communities, industry, government, and non-profit partners.
This award will support the development of an RCN within the Commonwealth of Virginia which will coordinate multiple partners in developing innovations utilizing smart and connected technologies. The goal of the research coordination network is to enable researchers and citizens to collaborate on research supporting enhanced quality of life for medium, small, and rural communities which frequently lack the communication and other infrastructure available in cities. The research coordination network will be led by the University of Virginia. There are 14 partner organizations including six research center partners in transportation, environment, architecture and urban planning, and engineering and technology; two State and Industry partners (Virginia Municipal League and Virginia Center for Innovative Technology); four community partners representing health services (UVA Center for Telemedicine), small and remote communities (Weldon Cooper Center), neighborhood communities (Charlottesville Neighborhood Development), and urban communities (Thriving Cities); and two national partners which support high speed networking (US-Ignite) and city-university hubs (MetroLab). Examples of research coordination include telemedicine services, transportation services, and user-centric and community-centric utilization and deployment of sensor technologies.
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TEAM MEMBERS:
Ila BermanT. Donna ChenKaren RheubanQian Cai
By engaging diverse publics in immersive and deliberative learning forums, this three-year project will use NOAA data and expertise to strengthen community resilience and decision-making around a variety of climate and weather-related hazards across the United States. Led by Arizona State University’s Consortium for Science, Policy & Outcomes and the Museum of Science Boston, the project will develop citizen forums hosted by regional science centers to create a new, replicable model for learning and engagement. These forums, to be hosted initially in Boston and Phoenix and then expanded to an additional six sites around the U.S., will facilitate public deliberation on real-world issues of concern to local communities, including rising sea levels, extreme precipitation, heat waves, and drought. The forums will identify and clarify citizen values and perspectives while creating stakeholder networks in support of local resilience measures. The forum materials developed in collaboration with NOAA will foster better understanding of environmental changes and best practices for improving community resiliency, and will create a suite of materials and case studies adaptable for use by science centers, teachers, and students. With regional science centers bringing together the public, scientific experts, and local officials, the project will create resilience-centered partnerships and a framework for learning and engagement that can be replicated nationwide.
The lack of diversity in the clinician-scientist workforce is a “very serious concern to the NIH” and to health care professions. Current efforts to broaden participation in STEM fields typically target high school and college-age students. Yet, history and national trends suggest that these efforts alone will not result in rapid or significant change because racial and ethnic disparities are already evident by this time. Children are forming career preferences as early as elementary school, a time when they have little exposure to science and STEM career options. The overall vision of this team is to meet the nation’s workforce goal of developing a diverse, clinician-scientist workforce while meeting the nation’s STEM goals. As a step toward this vision, the goal of This Is How We “Role” is to inspire elementary school students towards careers as clinician-scientists by increasing the number of K-4 students with authentic STEM experiences.
This goal will be attained through two specific aims. The focus of Aim 1 is to distribute and evaluate a K-4 afterschool program across the diverse geographic regions of the US, to support the development of a robust and diverse clinician-scientist workforce. Aim 2 is focused on developing the community resources (afterschool program curriculum, informational books and online certificate program) for promoting health science literacy and encouraging careers in biomedical and clinical research for K-4 students from underserved and underrepresented communities. Combined, these aims will enhance opportunities for young children from underserved communities to have authentic STEM experiences by providing culturally responsive, afterschool educational programs which will be delivered by university student and clinician-scientist role models who are diverse in gender, race, and ethnicity.
Books and an online certificate program about health issues impacting people and their animals (i.e. diabetes, tooth decay) will be developed and distributed to children unable to attend afterschool programs. Further, by engaging veterinary programs and students from across the US, along with practicing veterinarians, this program will examine whether the approaches and curriculum developed are effective across the diverse communities and geographic regions that span the country. Elementary school teachers will serve as consultants to ensure that educational materials are consistent with Next Generation Science Standards, and will assist in training university students and clinician-scientists to better communicate the societal impact of their work to the public.
The program will continue to use the successful model of engaging elementary school students in STEM activities by using examples of health conditions that impact both people and their animals. Ultimately, this project will educate, improve the health of, and attract a diverse pool of elementary school students, particularly those from underserved communities, to careers as clinician-scientists.