With the rapid development of technologies for exposure monitoring and data analysis, opportunities for utilizing citizen science and community-engaged research approaches in advancing environmental health research are ever increasing. On December 8-9, 2016, the Research Triangle Environmental Health Collaborative (Collaborative) held its 9th Summit, Community Engaged Research and Citizen Science Summit: Advancing Environmental Public Health to Meet the Needs of Our Communities in Research Triangle Park, NC. The timing of this particular Summit was fortuitous as it dovetailed with the
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Research Triangle Environmental Health CollaborativeMadelyn HuangKimberly Thigpen Tart
The participation of non-professionally trained people in so-called citizen science (CS) projects is a much discussed topic at the moment. Frequently, however, the contribution of citizens is limited to only a few narrow tasks. Focusing on an initiative dedicated to the study of the human microbiome, this paper describes such a case where citizen participation is limited to the provision of funding, samples, and personal data. Researchers opted for a crowdsourced approaches because other forms of funding and recruitment did not seem feasible. We argue that despite the narrow understanding of
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Lorenzo Del SavioBarbara PrainsackAlena Buxy
Determined to learn the extent to which a local contaminated site was impacting community health, the Native American community of Akwesasne reached out to a research university, eventually partnering on the first large-scale environmental health community based participatory research project (CBPR). Based on interviews with scientists, community fieldworkers, and study participants, this article examines the ways in which collaborating on these studies was beneficial for all parties — especially in the context of citizen science goals of education and capacity building — as well as the
Many citizen science projects deal with high attrition rates. The Dutch Great Influenza Survey is an exception to this rule. In the current study, we conducted an online questionnaire (N=1610) to investigate the motivation and learning impact of this loyal, active participant base. Results show that the desire to contribute to a larger (scientific) goal is the most important motivator for all types of participants and that availability of scientific information and data are important for learning. We suggest similar projects seek (social) media attention regularly, linking project findings to
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Anne Land-ZandstraMara M. van BeusekomCarl KoppeschaarJos M. van den Broek
This essay reflects on three figures that can be used to make sense of the changing nature of public participation in the life sciences today: outlaws, hackers and Victorian gentlemen. Occasioned by a symposium held at UCLA (Outlaw Biology: Public Participation in the Age of Big Bio), the essay introduces several different modes of participation (DIY Bio, Bio Art, At home clinical genetics, patient advocacy and others) and makes three points: 1) that public participation is first a problem of legitimacy, not legality or safety; 2) that public participation is itself enabled by and thrives on
In this essay, I argue that the rise of personal genomics is technologically, economically, and most importantly, discursively tied to the rise of network subjectivity, an imperative of which is an understanding of self as always already a subject in the network. I illustrate how personal genomics takes full advantage of social media technology and network subjectivity to advertise a new way of doing research that emphasizes collaboration between researchers and its members. Sharing one’s genetic information is considered to be an act of citizenship, precisely because it is good for the
Understanding a community's concerns and informational needs is crucial to conducting and improving environmental health research and literacy initiatives. We hypothesized that analysis of community inquiries over time at a legacy mining site would be an effective method for assessing environmental health literacy efforts and determining whether community concerns were thoroughly addressed. Through a qualitative analysis, we determined community concerns at the time of being listed as a Superfund site. We analyzed how community concerns changed from this starting point over the subsequent
A research project that is only expert-driven may ignore the role of local knowledge in research, often gives low priority to the development of a comprehensive communication strategy to engage the community, and may not deliver the results of the study to the community in an effective way. Objective: To demonstrate how a research program can respond to a community research need, establish a community-academic partnership, and build a co-created citizen science program. Methods: A place-based, community-driven project was designed where academics and community members maintained a reciprocal
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Univeristy of Wisconsin- StoutMonica Ramirez-AndreottaMark BrusseauJanick ArtiolaRaina MaierA Jay Gandolfi