Environmental health literacy (EHL) has recently been defined as the continuum of environmental health knowledge and awareness, skills and self-efficacy, and community action. In this study, an interdisciplinary team of university scientists, partnering with local organizations, developed and facilitated EHL trainings with special focus on rainwater harvesting and water contamination, in four communities with known environmental health stressors in Arizona, USA. These participatory trainings incorporated participants’ prior environmental health risk knowledge and personal experiences to co
Development of an online interactive exhibition of patient and medical practitioner testimonials from six to eight Central Texas communities.
Communities of Care: Documenting Voices of Healing and Endurance is a community-based multimedia storytelling project focusing on illness and healthcare narratives. This project will generate and curate its own archive by asking participants to produce narratives through writing, photography, video, and oral histories.
BHS is requesting NEH funds to support its newest exhibition, Sick: Seven Diseases That Changed Brooklyn, which, along with complementary education programs, public programs, and a project website, aims to reveal to diverse audiences that conceptions of illness and health are a manifestation of not just biology, but beliefs, institutions, and identity. Sick will use Brooklyn’s rich history to show how concepts of illness and wellness have transformed over 400 years with a focus on seven different diseases. Topics range from smallpox and Native Americans in the seventeenth century; to devastating nineteenth-century outbreaks of cholera in the growing city of Brooklyn; to pharmaceutical innovations that would grow into global corporations; to local doctors and nurses, activists, and communities who fought disease and redefined caregiving; to the experiences of a diverse group of borough residents and their families during the earliest days of HIV/AIDS; and more.
A study in South Africa shed light on a set of factors, specific to this country, that compel South African scientists towards public engagement. It highlights the importance of history, politics, culture and socio-economic conditions in influencing scientists' willingness to engage with lay audiences. These factors have largely been overlooked in studies of scientists' public communication behaviours.
We review how the Wellcome Collection exhibition ‘Teeth’ enacts meanings from an educational anthropology and Science and Technology Studies perspective. The exhibition tells the history of dental science. It starts with accounts of the painful procedures and social inequalities of early oral healthcare. As it moves towards the present day it shows improved scientific knowledge, tools and public health promotion, and closes with current sophisticated technologies and practices. However it underrepresents contemporary social inequalities. We conclude that science communication exhibition
This paper deals with the journalistic coverage of biologically active compounds presented as promising drugs in Brazil. The sample consists of 214 journalistic stories on 40 compounds published in two daily newspapers and a monthly science magazine from January 1990 to December 2016. After 27 years, although journalists and scientists had claimed that all compounds would become drugs in a few years, only two completed the evaluation tests and were approved for commercialisation. The paper provides a series of strategies to build a more analytical view on drug research and development.
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TEAM MEMBERS:
Carlos Henrique FioravantiCésar Maschio Fioravanti
A report following the 2016 Environmental Health Summit recommended engaging citizens in creating their own knowledge and solutions, thus ensuring that their concerns are adequately addressed and promoting sustainability of community projects. Indeed, citizen science has the potential to initiate a cascade of events with a positive ripple effect that includes a more diverse future STEM and biomedical workforce. This SEPA proposal involves the establishment of WE ENGAGE – an informal, citizen science-based, environmental health experiential learning program designed in partnership with and for under resourced communities struggling with health and environmental health challenges. Its purpose is to actively engage and build the citizen science capacity of citizens living in a single cluster of three contiguous under resourced, minority Cincinnati neighborhoods where generational challenges continue to plague residents despite the presence of established academic-community partnerships. Our hypothesis is that community-informed, experiential learning opportunities outside of the classroom that are structured, multi-generational, and story-based will encourage a) the active asking, discussion about, and answering of relevant complex health and environmental questions so that individuals and communities can plan action steps to make better health choices and pursue healthier environments, and b) greater interest and confidence in pursuing formal biomedical/STEM education and STEM careers. Our program has three specific aims: 1) We will co-create tailored story- based (graphic novel style) STEM education materials with a community advisory board and offer informal STEM education and research training to our target communities; 2) we will facilitate the application of scientific inquiry skills to improve health via community-led health fairs that use an innovative electronic health passport platform to collect data and through facilitated community discussions of health fair data to generate motivating stories to share; and 3) we will facilitate the application of scientific inquiry skills to foster community pride and activism in promoting healthier/safer built environments via walking environmental assessments. As in aim 2, facilitated discussions will be held to spur future community based participatory research studies and interventions. Critical to our success is the concept of storytelling. Storytelling is a foundation of the human experience. A key purpose of storytelling is not just understanding the world, but positively transforming it. It is a common language. Bringing together STEM concepts in the form of a story increases their appeal and meaning. Later, the very process of community data collection gives individuals a voice. In a data story, hundreds to millions of voices can be distilled into a single narrative that can help community members probe important underlying associations and get to the root causes of complicated health issues relevant to their communities. Through place based, understandable, motivating data stories, the community’s collective voice is clearer—leading to relevant and viable actions that can be decided and taken together. From preventing chronic disease, to nurturing healthier environments, to encouraging STEM education — stories have unlimited potential.
Public Health Relevance Statement:
Narrative WE ENGAGE is an informal citizen science-based, experiential learning program designed in partnership with and for middle schoolers to adults living in under resourced minority communities. Using the power of data collection and storytelling, its purpose is to actively engage citizens in STEM/research education and training to encourage a more diverse future workforce and to sustainably build local capacity to ask and answer complex health and environmental questions relevant to their communities. Further, by engaging citizens and giving them a more equitable stake in the research process, they are better able to discover their own solutions.
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TEAM MEMBERS:
Melinda Sue ButschkovacicSusan Ann Hershberger
The goals of this proposal are: 1) to provide opportunities for underrepresented students to consider careers in basic or clinical research by exciting them through an educational Citizen Science research project; 2) to provide teachers with professional development in science content and teaching skills using research projects as the infrastructure; and 3) to improve the environments and behaviors in early childcare and education settings related to healthy lifestyles across the state through HSTA students Citizen Science projects. The project will complement or enhance the training of a workforce to meet the nation’s biomedical, behavioral and clinical research needs. It will encourage interactive partnerships between biomedical and clinical researchers,in-service teachers and early childcare and education facilities to prevent obesity.
Specific Aim I is the Biomedical Summer Institute for Teachers led by university faculty. This component is a one week university based component. The focus is to enhance teacher knowledge of biomedical characteristics and problems associated with childhood obesity, simple statistics, ethics and HIPAA compliance, and the principles of Citizen Science using Community Based Participatory Research (CBPR). The teachers, together with the university faculty and staff, will develop the curriculum and activities for Specific Aim II.
Specific Aim II is the Biomedical Summer Institute for Students, led by HSTA teachers guided by university faculty. This experience will expose 11th grade HSTA students to the biomedical characteristics and problems associated with obesity with a focus on early childhood. Students will be trained on Key 2 a Healthy Start, which aims to improve nutrition and physical activity best practices, policies and environments in West Virginia’s early child care and education programs. The students will develop a meaningful project related to childhood obesity and an aspect of its prevention so that the summer institute bridges seamlessly into Specific Aim III.
Specific Aim III is the Community Based After School Club Experiences. The students and teachers from the summer experience will lead additional interested 9th–12th grade students in their clubs to examine their communities and to engage community members in conducting public health intervention research in topics surrounding childhood obesity prevention through Citizen Science. Students and teachers will work collaboratively with the Key 2 a Healthy Start team on community projects that will be focused on providing on-going technical assistance that will ultimately move the early childcare settings towards achieving best practices related to nutrition and physical activity in young children.
Citizen science is a form of Public Participation in Scientific Research (PPSR) in which the participants are engaged in the scientific process to support research that results in scientifically valid data. Opportunities for participation in real and authentic scientific research have never been larger or broader than they are today. The growing popularity and refinement of PPSR efforts (such as birding and species counting studies orchestrated by the Cornell Lab of Ornithology) have created both an opportunity for science engagement and a need for more research to better implement such projects in order to maximize both benefits to and contributions from the public.
Towards this end, Shirk et al. have posted a design framework for PPSR projects that delineates distinct levels of citizen scientist participation; from the least to the highest level of participation, these categories are contract, contribute, collaborate, co-create, and colleagues. The distinctions among these levels are important to practitioners seeking to design effective citizen science programs as each increase in citizen science participation in the scientific process is hypothesized to have both benefits and obstacles. The literature on citizen science models of PPSR calls for more research on the role that this degree of participation plays in the quality of that participation and related learning outcomes (e.g., Shirk et al., 2012; Bonney et al., 2009). With an unprecedented interest in thoughtfully incorporating citizen science into health-based studies, citizen science practitioners and health researchers first need a better understanding of the role of culture in how different communities approach and perceive participation in health-related studies, the true impact of intended educational efforts from participation, and the role participation in general has on the scientific process and the science outcome.
Project goal to address critical barrier in the field: Establish best practices for use of citizen science in the content area of human health-based research, and better inform the design of future projects in PPSR, both in the Denver Museum of Nature & Science’s Genetics of Taste Lab (Lab), and importantly, in various research and educational settings across the field.
Aims
Understand who currently engages in citizen science projects in order to design strategies to overcome the barriers to participation that occur at each level of the PPSR framework, particularly among audiences underrepresented in STEM.
Significantly advance the current knowledge regarding how citizen scientists engage in, and learn from, and participate in the different levels of the PPSR framework.
Determine the impact that each stage of citizen science participation has on the scientific process.
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TEAM MEMBERS:
Nichole GarneauTiffany Nuessle
resourceevaluationMuseum and Science Center Programs
The Museum of Science, Boston’s Research and Evaluation Department conducted a summative evaluation of The Hall of Human Life (HHL) exhibition. This 9,700 square foot exhibition is geared towards older children and adults. It is focused on human biology and human health with the main message, “Human beings are changing in a changing environment.” Visitors are able to use their own bodies and behaviors to understand biological mechanisms. Unique to this exhibition, visitors are able to use scannable wristbands to record and compare personal data with other Museum visitors to learn about their
This NSF INCUDES Design and Development Launch Pilot will increase the recruitment, retention, and matriculation of racial and ethnic minorities in STEM Ph.D. programs contributing to hazards and disaster research. Increasing STEM focused minorities on hazards mitigation, and disaster research areas will benefit society and contribute to the achievements of specific, desired societal outcomes following disasters. The Minority SURGE Capacity in Disasters (SURGE) launch pilot will provide the empirical research to identify substantial ways to increase the underrepresentation of minorities in STEM disciplines interested in hazards mitigation and disaster research. Increasing the involvement of qualified minorities will help solve the broader vulnerability concerns in these communities and help advance the body of knowledge through the diversity of thought and creative problem solving in scholarship and practice. Utilizing workshops and a multifaceted mentorship program SURGE creates a new model that addresses the diversity concerns in both STEM and disaster fields, and make American communities more resilient following natural disasters. This project will be of interest to policymakers, educators and the general public.
The Minority SURGE Capacity in Disasters (SURGE) NSF INCLUDES Design and Development Launch Pilot will enhance the social capital of racial and ethnic minority communities by increasing their networks, connections, and access to disaster management decision-making among members of their community from STEM fields. The four-fold goals of SURGE are to: (1) increase the number of minority graduate researchers in STEM fields with a disaster focus; (2) develop and guide well-trained, qualified disaster scholars from STEM fields; (3) provide academic and professional mentorship for next generation minority STEM scholars in hazards mitigation and disaster research; and (4) develop professional and research opportunities that involve outreach and problem solving for vulnerable communities in the U.S. The SURGE project is organized as a lead-organization network through the University of Nebraska at Omaha and includes community partners. As a pilot project, SURGE participation is limited to graduate students from research-intensive universities across the country. Each student will attend workshops and training programs developed by the project leads. SURGE investigators will conduct project evaluation and assessment of their workshops, training, and mentorship projects. Results from evaluations and assessments will be presented at STEM and disaster-related conferences and published in peer-reviewed academic journals.
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TEAM MEMBERS:
DeeDee BennettLori PeekTerri NortonHans Louis-Charles
This project is a Design and Development Launch Pilot (DDLP) of the NSF INCLUDES program. The goal of the project is to enhance the knowledge and applicability of science, technology, engineering, and mathematics (STEM) for a broad cross-section of people living in the U.S,-Affiliated Pacific Islands. The focus will be on water resources, which is an extremely important topic for this region and equally relevant nationally. The project will engage local community groups and schools in water monitoring, sampling, and analysis, in order to promote the benefits of science education and careers among a population that is underrepresented in these areas. Moreover, the project will improve the capabilities of the island residents for making decisions about sustainable use and protection of these scarce resources. A functioning network will be established among the islands that will have a positive impact on the health and well-being of the residents.
This project will use water as a highly relevant topic in order to involve a wide range of individuals in both general STEM learning and the basic scientific principles as applied to water resources. Specific aspects include engaging K-12, higher education, informal educators and community members to manage water resources in a sustainable fashion that will reduce disaster risk. In addition, the project will empower local communities through water literacy to make better informed, evidence-based decisions that balance the needs of diverse stakeholder groups. The overarching goal is to further advance the inclusion of underrepresented learners in STEM fields. Benefits to society will accrue by: increasing STEM learning opportunities for ~6,500 students from underserved and underrepresented Indigenous Pacific Islanders that will enhance their eligibility for STEM careers; building community resiliency through a collective impact network to resolve emerging water crises; and fostering collaboration among different constituencies in remote communities to make better-informed decisions that reflect the needs and constraints of diverse interests.