The RASOR project is designed to increase engagement of students from rural Alaska communities in biomedical/STEM careers. Rural Alaskan communities are home to students of intersecting identities underrepresented in biomedical science, including Alaska Native, low-income, first generation college, and rural. Geographic isolation defines these communities and can limit the exposure of students to scientifically-minded peers, professional role models, and science career pathways. However these students also have a particularly strong environmental connection through subsistence and recreational activities, which makes the one-health approach to bio-medicine an intuitive and effective route for introducing scientific research and STEM content. In RASOR, we will implement place-based mentored research projects with students in rural Alaskan communities at the high school level, when most students are beginning to seriously consider career paths. The biomedical one-health approach will build connections between student experiences of village life in rural Alaska and biomedical research. Engaging undergraduate students in research has proved one of the most successful means of increasing the persistence of minority students in science (Kuh 2008). Furthermore, RASOR will integrate high school students into community-based participatory research (Israel et al. 2005). This approach is designed to demonstrate the practicality of scientific research, that science has the ability to support community and cultural priorities and to provide career pathways for individual community members. The one-health approach will provide continuity with BLaST, an NIH-funded BUILD program that provides undergraduate biomedical students with guidance and support. RASOR will work closely with BLaST, implementing among younger (pre-BLaST) students approaches that have been successful for retaining rural Alaska students along STEM pathways and tracking of post-RASOR students. Alaska Native and rural Alaska students are a unique and diverse population underrepresented in biomedical science and STEM fields.
A report following the 2016 Environmental Health Summit recommended engaging citizens in creating their own knowledge and solutions, thus ensuring that their concerns are adequately addressed and promoting sustainability of community projects. Indeed, citizen science has the potential to initiate a cascade of events with a positive ripple effect that includes a more diverse future STEM and biomedical workforce. This SEPA proposal involves the establishment of WE ENGAGE – an informal, citizen science-based, environmental health experiential learning program designed in partnership with and for under resourced communities struggling with health and environmental health challenges. Its purpose is to actively engage and build the citizen science capacity of citizens living in a single cluster of three contiguous under resourced, minority Cincinnati neighborhoods where generational challenges continue to plague residents despite the presence of established academic-community partnerships. Our hypothesis is that community-informed, experiential learning opportunities outside of the classroom that are structured, multi-generational, and story-based will encourage a) the active asking, discussion about, and answering of relevant complex health and environmental questions so that individuals and communities can plan action steps to make better health choices and pursue healthier environments, and b) greater interest and confidence in pursuing formal biomedical/STEM education and STEM careers. Our program has three specific aims: 1) We will co-create tailored story- based (graphic novel style) STEM education materials with a community advisory board and offer informal STEM education and research training to our target communities; 2) we will facilitate the application of scientific inquiry skills to improve health via community-led health fairs that use an innovative electronic health passport platform to collect data and through facilitated community discussions of health fair data to generate motivating stories to share; and 3) we will facilitate the application of scientific inquiry skills to foster community pride and activism in promoting healthier/safer built environments via walking environmental assessments. As in aim 2, facilitated discussions will be held to spur future community based participatory research studies and interventions. Critical to our success is the concept of storytelling. Storytelling is a foundation of the human experience. A key purpose of storytelling is not just understanding the world, but positively transforming it. It is a common language. Bringing together STEM concepts in the form of a story increases their appeal and meaning. Later, the very process of community data collection gives individuals a voice. In a data story, hundreds to millions of voices can be distilled into a single narrative that can help community members probe important underlying associations and get to the root causes of complicated health issues relevant to their communities. Through place based, understandable, motivating data stories, the community’s collective voice is clearer—leading to relevant and viable actions that can be decided and taken together. From preventing chronic disease, to nurturing healthier environments, to encouraging STEM education — stories have unlimited potential.
Public Health Relevance Statement:
Narrative WE ENGAGE is an informal citizen science-based, experiential learning program designed in partnership with and for middle schoolers to adults living in under resourced minority communities. Using the power of data collection and storytelling, its purpose is to actively engage citizens in STEM/research education and training to encourage a more diverse future workforce and to sustainably build local capacity to ask and answer complex health and environmental questions relevant to their communities. Further, by engaging citizens and giving them a more equitable stake in the research process, they are better able to discover their own solutions.
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TEAM MEMBERS:
Melinda Sue ButschkovacicSusan Ann Hershberger
The goals of this proposal are: 1) to provide opportunities for underrepresented students to consider careers in basic or clinical research by exciting them through an educational Citizen Science research project; 2) to provide teachers with professional development in science content and teaching skills using research projects as the infrastructure; and 3) to improve the environments and behaviors in early childcare and education settings related to healthy lifestyles across the state through HSTA students Citizen Science projects. The project will complement or enhance the training of a workforce to meet the nation’s biomedical, behavioral and clinical research needs. It will encourage interactive partnerships between biomedical and clinical researchers,in-service teachers and early childcare and education facilities to prevent obesity.
Specific Aim I is the Biomedical Summer Institute for Teachers led by university faculty. This component is a one week university based component. The focus is to enhance teacher knowledge of biomedical characteristics and problems associated with childhood obesity, simple statistics, ethics and HIPAA compliance, and the principles of Citizen Science using Community Based Participatory Research (CBPR). The teachers, together with the university faculty and staff, will develop the curriculum and activities for Specific Aim II.
Specific Aim II is the Biomedical Summer Institute for Students, led by HSTA teachers guided by university faculty. This experience will expose 11th grade HSTA students to the biomedical characteristics and problems associated with obesity with a focus on early childhood. Students will be trained on Key 2 a Healthy Start, which aims to improve nutrition and physical activity best practices, policies and environments in West Virginia’s early child care and education programs. The students will develop a meaningful project related to childhood obesity and an aspect of its prevention so that the summer institute bridges seamlessly into Specific Aim III.
Specific Aim III is the Community Based After School Club Experiences. The students and teachers from the summer experience will lead additional interested 9th–12th grade students in their clubs to examine their communities and to engage community members in conducting public health intervention research in topics surrounding childhood obesity prevention through Citizen Science. Students and teachers will work collaboratively with the Key 2 a Healthy Start team on community projects that will be focused on providing on-going technical assistance that will ultimately move the early childcare settings towards achieving best practices related to nutrition and physical activity in young children.
Citizen science is a form of Public Participation in Scientific Research (PPSR) in which the participants are engaged in the scientific process to support research that results in scientifically valid data. Opportunities for participation in real and authentic scientific research have never been larger or broader than they are today. The growing popularity and refinement of PPSR efforts (such as birding and species counting studies orchestrated by the Cornell Lab of Ornithology) have created both an opportunity for science engagement and a need for more research to better implement such projects in order to maximize both benefits to and contributions from the public.
Towards this end, Shirk et al. have posted a design framework for PPSR projects that delineates distinct levels of citizen scientist participation; from the least to the highest level of participation, these categories are contract, contribute, collaborate, co-create, and colleagues. The distinctions among these levels are important to practitioners seeking to design effective citizen science programs as each increase in citizen science participation in the scientific process is hypothesized to have both benefits and obstacles. The literature on citizen science models of PPSR calls for more research on the role that this degree of participation plays in the quality of that participation and related learning outcomes (e.g., Shirk et al., 2012; Bonney et al., 2009). With an unprecedented interest in thoughtfully incorporating citizen science into health-based studies, citizen science practitioners and health researchers first need a better understanding of the role of culture in how different communities approach and perceive participation in health-related studies, the true impact of intended educational efforts from participation, and the role participation in general has on the scientific process and the science outcome.
Project goal to address critical barrier in the field: Establish best practices for use of citizen science in the content area of human health-based research, and better inform the design of future projects in PPSR, both in the Denver Museum of Nature & Science’s Genetics of Taste Lab (Lab), and importantly, in various research and educational settings across the field.
Aims
Understand who currently engages in citizen science projects in order to design strategies to overcome the barriers to participation that occur at each level of the PPSR framework, particularly among audiences underrepresented in STEM.
Significantly advance the current knowledge regarding how citizen scientists engage in, and learn from, and participate in the different levels of the PPSR framework.
Determine the impact that each stage of citizen science participation has on the scientific process.
The NIH Science Education Partnership Award (SEPA) program of Emory University endeavors to use an over-arching theme of citizen science principles to:
develop an innovative curriculum based on citizen science and experiential learning to evaluate the efficacy of informal science education in after-school settings;
promote biomedical scientific careers in under-represented groups targeting females for Girls for Science summer research experiences;
train teachers in Title I schools to implement this citizen science based curriculum; and
disseminate the citizen science principles through outreach.
This novel, experiential science and engineering program, termed Experiential Citizen Science Training for the Next Generation (ExCiTNG), encompasses community-identified topics reflecting NIH research priorities. The curriculum is mapped to Next Generation Science Standards.
A comprehensive evaluation plan accompanies each program component, composed of short- and/or longer-term outcome measures. We will use our existing outreach program (Students for Science) along with scientific community partnerships (Atlanta Science Festival) to implement key aspects of the program throughout the state of Georgia. These efforts will be overseen by a central Steering Committee composed of leadership of the Community Education Research Program of the Emory/Morehouse/Georgia Institute of Technology Atlanta Clinical Translational Science Institute (NIH CTSA), the Principal Investigators, representatives of each program component, and an independent K–12 STEM evaluator from the Georgia Department of Education.
The Community Advisory Board, including educators, parents, and community members, will help guide the program’s implementation and monitor progress. A committee of NIH-funded investigators, representing multiple NIH institutes along with experienced science writers, will lead the effort for dissemination and assure that on-going and new NIH research priorities are integrated into the program’s curriculum over time.
People of color who live in low income, urban communities experience lower levels of educational attainment than whites and continue to be underrepresented in science at all educational and professional levels. It is widely accepted that this underrepresentation in science is related, not only to processes of historical exclusion and racism, but to how science is commonly taught and that investigating authentic, relevant science questions can improve engagement and learning of underrepresented students. Approaching science in these ways, however, requires new teaching practices, including ways of relating cross-culturally. In addition to inequity in science and broader educational outcomes, people of color from low income, urban communities experience high rates of certain health problems that can be directly or indirectly linked to mosquitoes. Recognizing that undertaking public health research and preventative outreach efforts in these communities is challenging, there is a critical need for an innovative approach that leverages local youth resources for epidemiological inquiry and education. Such an approach would motivate the pursuit of science among historically-excluded youth while, additionally, involving pre-service, in-service, and informal educators in joint participatory inquiry structured around opportunities to learn and practice authentic, ambitious science teaching and learning.
Our long-term goal is to interrupt the reproduction of educational and health disparities in a low-income, urban context and to support historically-excluded youth in their trajectories toward science. This will be accomplished through the overall objective of this project to promote authentic science, ambitious teaching, and an orientation to science pursuits among elementary students participating in a university-school-community partnership promise program, through inquiry focused on mosquitoes and human health. The following specific aims will be pursued in support of the objective:
1. Historically-excluded youth will develop authentic science knowledge, skills, and dispositions, as well as curiosity, interest, and positive identification with science, and motivation for continued science study by participating in a scientific community and engaging in the activities and discourses of the discipline. Teams of students and educators will engage in community-based participatory research aimed at assessing and responding to health and well-being issues that are linked to mosquitoes in urban, low-income communities. In addition, the study of mosquitoes will engage student curiosity and interest, enhance their positive identification with science, and motivate their continued study.
2. Informal and formal science educators will demonstrate competence in authentic and ambitious science teaching and model an affirming orientation toward cultural diversity in science. Pre-service, in-service, and informal educators will participate in courses and summer institutes where they will be exposed to ambitious teaching practices and gain proficiency, through reflective processes such as video study, in adapting traditional science curricula to authentic science goals that meet the needs of historically excluded youth.
3. Residents in the community will display more accurate understandings and transformed practices with respect to mosquitoes in the urban ecosystem in service of enhanced health and well-being. Residents will learn from an array of youth-produced, culturally responsive educational materials that will be part of an ongoing outreach and prevention campaign to raise community awareness of the interplay between humans and mosquitoes.
These outcomes are expected to have an important positive impact because they have potential for improving both immediate and long-term educational and health outcomes of youth and other residents in a low-income, urban community.
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TEAM MEMBERS:
Katherine Richardson BrunaLyric Colleen Bartholomay
San Francisco Health Investigators (SF HI), developed and led by the Science & Health Education Partnership at UC San Francisco, will use a community-based participatory research model to provide authentic research experiences for high school students, the majority from backgrounds underrepresented in the sciences.
SF HI will:
1) Develop a community of high school Student Researchers who will conduct research into health issues in their communities, study how adolescents respond to health messages, create new health messages informed by this research, and study the broader impacts of the materials they develop.
2) Partner with educational researchers to research the effects of SF HI on the high school student participants and the impact of the materials on the broader community.
3) Disseminate those materials shown to have the greatest impact nationally.
4) Publish results on the public understanding and awareness of health issues in peer-reviewed journals and other forums to inform and advance the field of public health.
The SF HI model is designed to leverage students’ cultural and technological knowledge and their social capital in the role of Student Researchers as they study the awareness, knowledge and attitudes about current health issues in their communities. It will have a broad range of impacts. Over the course of the project, 100 urban public high school students will be immersed in research projects that have the potential to directly benefit the health of their communities. These Student Researchers will design health messages informed by their social, cultural, and community knowledge and by their research results. They will collectively survey more than 8,500 community members – their peers, neighbors, and attendees at public gatherings to assess the effectiveness of these materials. Student-developed materials will be distributed broadly via the web, high school and college wellness centers, the NIH SEPA community, and other networks – thus these materials have the potential to reach over 1.5 million adolescents and young adults over the life of the project.
This project brings real scientific research into the public domain by establishing a research laboratory in a museum setting where visitors not only enroll in the study, they help shape it through their work as citizen scientists. Findings from the study will increase the public understanding of how genetic research translates into meaningful personal information that can be used to better understand personal health risks and opportunities. In a community-based participatory research laboratory, school-aged children and their families will participate in an authentic research project on the genetics of taste. In a series of simple but highly specific taste tests, participants will learn which gene variations they possess and how these variations influence how they taste foods. Taste function has been increasingly linked to human health, in that variability in taste sensation correlates with, and may in part be causal for, major health problems, including cardiovascular disease and obesity. Interactive exhibit components will inform participants about the scientific process, the principles of genetics, the human genome project and genetic variation. Teaching the public about their genetic profile and its influence on taste may have a positive impact on major health threats such as cardiovascular disease and obesity. The data collected from museum visitors who choose to enroll in the study will be sent to the museum's academic partners for further analysis and inclusion in their ongoing research analysis and publications. This laboratory experience not only engages and educates the public, but also advances the research enterprise and offers a vivid model for how to translate research into the public domain.
Understanding a community's concerns and informational needs is crucial to conducting and improving environmental health research and literacy initiatives. We hypothesized that analysis of community inquiries over time at a legacy mining site would be an effective method for assessing environmental health literacy efforts and determining whether community concerns were thoroughly addressed. Through a qualitative analysis, we determined community concerns at the time of being listed as a Superfund site. We analyzed how community concerns changed from this starting point over the subsequent