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resource project Public Programs
Citizen science is a form of Public Participation in Scientific Research (PPSR) in which the participants are engaged in the scientific process to support research that results in scientifically valid data. Opportunities for participation in real and authentic scientific research have never been larger or broader than they are today. The growing popularity and refinement of PPSR efforts (such as birding and species counting studies orchestrated by the Cornell Lab of Ornithology) have created both an opportunity for science engagement and a need for more research to better implement such projects in order to maximize both benefits to and contributions from the public.

Towards this end, Shirk et al. have posted a design framework for PPSR projects that delineates distinct levels of citizen scientist participation; from the least to the highest level of participation, these categories are contract, contribute, collaborate, co-create, and colleagues. The distinctions among these levels are important to practitioners seeking to design effective citizen science programs as each increase in citizen science participation in the scientific process is hypothesized to have both benefits and obstacles. The literature on citizen science models of PPSR calls for more research on the role that this degree of participation plays in the quality of that participation and related learning outcomes (e.g., Shirk et al., 2012; Bonney et al., 2009). With an unprecedented interest in thoughtfully incorporating citizen science into health-based studies, citizen science practitioners and health researchers first need a better understanding of the role of culture in how different communities approach and perceive participation in health-related studies, the true impact of intended educational efforts from participation, and the role participation in general has on the scientific process and the science outcome.

Project goal to address critical barrier in the field: Establish best practices for use of citizen science in the content area of human health-based research, and better inform the design of future projects in PPSR, both in the Denver Museum of Nature & Science’s Genetics of Taste Lab (Lab), and importantly, in various research and educational settings across the field.

Aims


Understand who currently engages in citizen science projects in order to design strategies to overcome the barriers to participation that occur at each level of the PPSR framework, particularly among audiences underrepresented in STEM.
Significantly advance the current knowledge regarding how citizen scientists engage in, and learn from, and participate in the different levels of the PPSR framework.
Determine the impact that each stage of citizen science participation has on the scientific process.
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TEAM MEMBERS: Nichole Garneau Tiffany Nuessle
resource project Public Programs
The NIH Science Education Partnership Award (SEPA) program of Emory University endeavors to use an over-arching theme of citizen science principles to:


develop an innovative curriculum based on citizen science and experiential learning to evaluate the efficacy of informal science education in after-school settings;
promote biomedical scientific careers in under-represented groups targeting females for Girls for Science summer research experiences;
train teachers in Title I schools to implement this citizen science based curriculum; and
disseminate the citizen science principles through outreach.


This novel, experiential science and engineering program, termed Experiential Citizen Science Training for the Next Generation (ExCiTNG), encompasses community-identified topics reflecting NIH research priorities. The curriculum is mapped to Next Generation Science Standards.

A comprehensive evaluation plan accompanies each program component, composed of short- and/or longer-term outcome measures. We will use our existing outreach program (Students for Science) along with scientific community partnerships (Atlanta Science Festival) to implement key aspects of the program throughout the state of Georgia. These efforts will be overseen by a central Steering Committee composed of leadership of the Community Education Research Program of the Emory/Morehouse/Georgia Institute of Technology Atlanta Clinical Translational Science Institute (NIH CTSA), the Principal Investigators, representatives of each program component, and an independent K–12 STEM evaluator from the Georgia Department of Education.

The Community Advisory Board, including educators, parents, and community members, will help guide the program’s implementation and monitor progress. A committee of NIH-funded investigators, representing multiple NIH institutes along with experienced science writers, will lead the effort for dissemination and assure that on-going and new NIH research priorities are integrated into the program’s curriculum over time.
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TEAM MEMBERS: Adam Marcus Theresa Gillespie
resource project Media and Technology
People of color who live in low income, urban communities experience lower levels of educational attainment than whites and continue to be underrepresented in science at all educational and professional levels. It is widely accepted that this underrepresentation in science is related, not only to processes of historical exclusion and racism, but to how science is commonly taught and that investigating authentic, relevant science questions can improve engagement and learning of underrepresented students. Approaching science in these ways, however, requires new teaching practices, including ways of relating cross-culturally. In addition to inequity in science and broader educational outcomes, people of color from low income, urban communities experience high rates of certain health problems that can be directly or indirectly linked to mosquitoes. Recognizing that undertaking public health research and preventative outreach efforts in these communities is challenging, there is a critical need for an innovative approach that leverages local youth resources for epidemiological inquiry and education. Such an approach would motivate the pursuit of science among historically-excluded youth while, additionally, involving pre-service, in-service, and informal educators in joint participatory inquiry structured around opportunities to learn and practice authentic, ambitious science teaching and learning.

Our long-term goal is to interrupt the reproduction of educational and health disparities in a low-income, urban context and to support historically-excluded youth in their trajectories toward science. This will be accomplished through the overall objective of this project to promote authentic science, ambitious teaching, and an orientation to science pursuits among elementary students participating in a university-school-community partnership promise program, through inquiry focused on mosquitoes and human health. The following specific aims will be pursued in support of the objective:

1. Historically-excluded youth will develop authentic science knowledge, skills, and dispositions, as well as curiosity, interest, and positive identification with science, and motivation for continued science study by participating in a scientific community and engaging in the activities and discourses of the discipline. Teams of students and educators will engage in community-based participatory research aimed at assessing and responding to health and well-being issues that are linked to mosquitoes in urban, low-income communities. In addition, the study of mosquitoes will engage student curiosity and interest, enhance their positive identification with science, and motivate their continued study.

2. Informal and formal science educators will demonstrate competence in authentic and ambitious science teaching and model an affirming orientation toward cultural diversity in science. Pre-service, in-service, and informal educators will participate in courses and summer institutes where they will be exposed to ambitious teaching practices and gain proficiency, through reflective processes such as video study, in adapting traditional science curricula to authentic science goals that meet the needs of historically excluded youth.

3. Residents in the community will display more accurate understandings and transformed practices with respect to mosquitoes in the urban ecosystem in service of enhanced health and well-being. Residents will learn from an array of youth-produced, culturally responsive educational materials that will be part of an ongoing outreach and prevention campaign to raise community awareness of the interplay between humans and mosquitoes.

These outcomes are expected to have an important positive impact because they have potential for improving both immediate and long-term educational and health outcomes of youth and other residents in a low-income, urban community.
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TEAM MEMBERS: Katherine Richardson Bruna Lyric Colleen Bartholomay
resource project Public Programs
San Francisco Health Investigators (SF HI), developed and led by the Science & Health Education Partnership at UC San Francisco, will use a community-based participatory research model to provide authentic research experiences for high school students, the majority from backgrounds underrepresented in the sciences.

SF HI will:
1) Develop a community of high school Student Researchers who will conduct research into health issues in their communities, study how adolescents respond to health messages, create new health messages informed by this research, and study the broader impacts of the materials they develop.
2) Partner with educational researchers to research the effects of SF HI on the high school student participants and the impact of the materials on the broader community.
3) Disseminate those materials shown to have the greatest impact nationally.
4) Publish results on the public understanding and awareness of health issues in peer-reviewed journals and other forums to inform and advance the field of public health.

The SF HI model is designed to leverage students’ cultural and technological knowledge and their social capital in the role of Student Researchers as they study the awareness, knowledge and attitudes about current health issues in their communities. It will have a broad range of impacts. Over the course of the project, 100 urban public high school students will be immersed in research projects that have the potential to directly benefit the health of their communities. These Student Researchers will design health messages informed by their social, cultural, and community knowledge and by their research results. They will collectively survey more than 8,500 community members – their peers, neighbors, and attendees at public gatherings to assess the effectiveness of these materials. Student-developed materials will be distributed broadly via the web, high school and college wellness centers, the NIH SEPA community, and other networks – thus these materials have the potential to reach over 1.5 million adolescents and young adults over the life of the project.
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TEAM MEMBERS: Rebecca Smith Katherine Nielsen
resource research Public Programs
The participation of non-professionally trained people in so-called citizen science (CS) projects is a much discussed topic at the moment. Frequently, however, the contribution of citizens is limited to only a few narrow tasks. Focusing on an initiative dedicated to the study of the human microbiome, this paper describes such a case where citizen participation is limited to the provision of funding, samples, and personal data. Researchers opted for a crowdsourced approaches because other forms of funding and recruitment did not seem feasible. We argue that despite the narrow understanding of
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TEAM MEMBERS: Lorenzo Del Savio Barbara Prainsack Alena Buxy
resource research Public Programs
Determined to learn the extent to which a local contaminated site was impacting community health, the Native American community of Akwesasne reached out to a research university, eventually partnering on the first large-scale environmental health community based participatory research project (CBPR). Based on interviews with scientists, community fieldworkers, and study participants, this article examines the ways in which collaborating on these studies was beneficial for all parties — especially in the context of citizen science goals of education and capacity building — as well as the
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TEAM MEMBERS: Elizabeth Hoover
resource research Media and Technology
Many citizen science projects deal with high attrition rates. The Dutch Great Influenza Survey is an exception to this rule. In the current study, we conducted an online questionnaire (N=1610) to investigate the motivation and learning impact of this loyal, active participant base. Results show that the desire to contribute to a larger (scientific) goal is the most important motivator for all types of participants and that availability of scientific information and data are important for learning. We suggest similar projects seek (social) media attention regularly, linking project findings to
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TEAM MEMBERS: Anne Land-Zandstra Mara M. van Beusekom Carl Koppeschaar Jos M. van den Broek