EdVenture Children's Museum, a hands-on, children's museum in Columbia, S.C., in close collaboration with NIH-funded researchers at the University of South Carolina, proposes a five-year, SEPA project titled "Unlocking the Mysteries of Chronic Diseases: BioInvestigations for Family, School and Youth Audiences." The program will develop teaching laboratories and experiments to educate youth ages 5-14, teens and adults about biomedical science topics in a fun, investigatory way. From these laboratory experiences, EdVenture will also develop educational programs designed to engage disadvantaged audiences in schools and communities to help expose them to the world of science and the benefits of community-based translational research. The laboratories and educational programs will utilize scientific content drawn from NIH-sponsored biomedical research, and will translate the research process and public impact into meaningful experiences for the public. These programs will reach a large population, both urban and rural, in socio-economically depressed areas of the state, promoting students' interest in topics that they may not otherwise be exposed to and encouraging a lifelong familiarity and facility with scientific thought and practice. Throughout the life expectancy of this project, a projected 2.5 million children and adults will experience the laboratories and related educational programs. Long-term goals are to encourage future biomedical science career choices, and most importantly, empower a child to take control over his/her own health decisions and to develop the necessary skills to navigate the flood of health information inherent in the quickly changing landscape that is health today.
This project brings real scientific research into the public domain by establishing a research laboratory in a museum setting where visitors not only enroll in the study, they help shape it through their work as citizen scientists. Findings from the study will increase the public understanding of how genetic research translates into meaningful personal information that can be used to better understand personal health risks and opportunities. In a community-based participatory research laboratory, school-aged children and their families will participate in an authentic research project on the genetics of taste. In a series of simple but highly specific taste tests, participants will learn which gene variations they possess and how these variations influence how they taste foods. Taste function has been increasingly linked to human health, in that variability in taste sensation correlates with, and may in part be causal for, major health problems, including cardiovascular disease and obesity. Interactive exhibit components will inform participants about the scientific process, the principles of genetics, the human genome project and genetic variation. Teaching the public about their genetic profile and its influence on taste may have a positive impact on major health threats such as cardiovascular disease and obesity. The data collected from museum visitors who choose to enroll in the study will be sent to the museum's academic partners for further analysis and inclusion in their ongoing research analysis and publications. This laboratory experience not only engages and educates the public, but also advances the research enterprise and offers a vivid model for how to translate research into the public domain.