Exploratorium’s The Phenomenal Genome: Evolving Public Understanding of Genetics in the Post-Mendelian Era project addresses the increasing need to develop genomic literacy in the public at large. The explosion of genomics research over the past two decades has led to an increasingly complex picture of the determinants of human health and human phenotypes, and the applications of this research are now making their way into the clinic, the media, and the hands of consumers. The goal of this project is to create a model for increasing genomic literacy through Informal Science Education programming (ISE), creating a pathway for better decision making for the health of individuals and society at large. The Phenomenal Genome focuses on general science museum visitors and teachers of middle and high school students.
The core of the Exploratorium’s approach to science education is the creation of intriguing, provocative and investigable phenomena that are experienced directly and personally through exhibits, facilitated explorations, programs, and teacher professional development. Over two years, we will develop, test, and iterate inquiry-based professional development to help teachers develop understanding and integrate the principles of contemporary genomics and genetics into their classrooms. 120 middle and high school teachers will be served during this period, and many more beyond that, as the activities and workshops developed become a regular part of our teacher professional development programming. A learning scientist specializing in teacher learning will conduct research to determine which approaches and experiences are most effective for this context, and why.
In a parallel process, we will develop and test exhibits and experiences on the museum floor for museum visitors, using a similar iterative process of prototype testing with an embedded learning scientist to study visitor learning. We plan to define the approaches that work across audiences and contexts, as well as those that work best in particular contexts.
Through this work, we will develop new resources for teaching and learning contemporary genomics and genetics, and identify promising practices in communicating contemporary genomics and genetics in informal spaces across audiences. We will disseminate our findings via conferences, peer-reviewed articles, and workshops for the ISE community.
A report following the 2016 Environmental Health Summit recommended engaging citizens in creating their own knowledge and solutions, thus ensuring that their concerns are adequately addressed and promoting sustainability of community projects. Indeed, citizen science has the potential to initiate a cascade of events with a positive ripple effect that includes a more diverse future STEM and biomedical workforce. This SEPA proposal involves the establishment of WE ENGAGE – an informal, citizen science-based, environmental health experiential learning program designed in partnership with and for under resourced communities struggling with health and environmental health challenges. Its purpose is to actively engage and build the citizen science capacity of citizens living in a single cluster of three contiguous under resourced, minority Cincinnati neighborhoods where generational challenges continue to plague residents despite the presence of established academic-community partnerships. Our hypothesis is that community-informed, experiential learning opportunities outside of the classroom that are structured, multi-generational, and story-based will encourage a) the active asking, discussion about, and answering of relevant complex health and environmental questions so that individuals and communities can plan action steps to make better health choices and pursue healthier environments, and b) greater interest and confidence in pursuing formal biomedical/STEM education and STEM careers. Our program has three specific aims: 1) We will co-create tailored story- based (graphic novel style) STEM education materials with a community advisory board and offer informal STEM education and research training to our target communities; 2) we will facilitate the application of scientific inquiry skills to improve health via community-led health fairs that use an innovative electronic health passport platform to collect data and through facilitated community discussions of health fair data to generate motivating stories to share; and 3) we will facilitate the application of scientific inquiry skills to foster community pride and activism in promoting healthier/safer built environments via walking environmental assessments. As in aim 2, facilitated discussions will be held to spur future community based participatory research studies and interventions. Critical to our success is the concept of storytelling. Storytelling is a foundation of the human experience. A key purpose of storytelling is not just understanding the world, but positively transforming it. It is a common language. Bringing together STEM concepts in the form of a story increases their appeal and meaning. Later, the very process of community data collection gives individuals a voice. In a data story, hundreds to millions of voices can be distilled into a single narrative that can help community members probe important underlying associations and get to the root causes of complicated health issues relevant to their communities. Through place based, understandable, motivating data stories, the community’s collective voice is clearer—leading to relevant and viable actions that can be decided and taken together. From preventing chronic disease, to nurturing healthier environments, to encouraging STEM education — stories have unlimited potential.
Public Health Relevance Statement:
Narrative WE ENGAGE is an informal citizen science-based, experiential learning program designed in partnership with and for middle schoolers to adults living in under resourced minority communities. Using the power of data collection and storytelling, its purpose is to actively engage citizens in STEM/research education and training to encourage a more diverse future workforce and to sustainably build local capacity to ask and answer complex health and environmental questions relevant to their communities. Further, by engaging citizens and giving them a more equitable stake in the research process, they are better able to discover their own solutions.
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TEAM MEMBERS:
Melinda Sue ButschkovacicSusan Ann Hershberger
The goals of this proposal are: 1) to provide opportunities for underrepresented students to consider careers in basic or clinical research by exciting them through an educational Citizen Science research project; 2) to provide teachers with professional development in science content and teaching skills using research projects as the infrastructure; and 3) to improve the environments and behaviors in early childcare and education settings related to healthy lifestyles across the state through HSTA students Citizen Science projects. The project will complement or enhance the training of a workforce to meet the nation’s biomedical, behavioral and clinical research needs. It will encourage interactive partnerships between biomedical and clinical researchers,in-service teachers and early childcare and education facilities to prevent obesity.
Specific Aim I is the Biomedical Summer Institute for Teachers led by university faculty. This component is a one week university based component. The focus is to enhance teacher knowledge of biomedical characteristics and problems associated with childhood obesity, simple statistics, ethics and HIPAA compliance, and the principles of Citizen Science using Community Based Participatory Research (CBPR). The teachers, together with the university faculty and staff, will develop the curriculum and activities for Specific Aim II.
Specific Aim II is the Biomedical Summer Institute for Students, led by HSTA teachers guided by university faculty. This experience will expose 11th grade HSTA students to the biomedical characteristics and problems associated with obesity with a focus on early childhood. Students will be trained on Key 2 a Healthy Start, which aims to improve nutrition and physical activity best practices, policies and environments in West Virginia’s early child care and education programs. The students will develop a meaningful project related to childhood obesity and an aspect of its prevention so that the summer institute bridges seamlessly into Specific Aim III.
Specific Aim III is the Community Based After School Club Experiences. The students and teachers from the summer experience will lead additional interested 9th–12th grade students in their clubs to examine their communities and to engage community members in conducting public health intervention research in topics surrounding childhood obesity prevention through Citizen Science. Students and teachers will work collaboratively with the Key 2 a Healthy Start team on community projects that will be focused on providing on-going technical assistance that will ultimately move the early childcare settings towards achieving best practices related to nutrition and physical activity in young children.
Biology has become a powerful and revolutionary technology, uniquely poised to transform and propel innovation in the near future. The skills, tools, and implications of using living systems to engineer innovative solutions to human health and global challenges, however, are still largely foreign and inaccessible to the general public. The life sciences need new ways of effectively engaging diverse audiences in these complex and powerful fields. Bio-Tinkering Playground will leverage a longtime partnership between the Stanford University Department of Genetics and The Tech Museum of Innovation to explore and develop one such powerful new approach.
The objective of Bio-Tinkering Playground is to create and test a groundbreaking type of museum space: a DIY community biology lab and bio-makerspace, complete with a unique repertoire of hands-on experiences. We will tackle the challenge of developing both open-ended bio-making activities and more scaffolded ones that, together, start to do for biology, biotech, and living systems what today’s makerspaces have done for engineering.
A combined Design Challenge Learning, making, and tinkering approach was chosen because of its demonstrated effectiveness at fostering confidence, creative capacity, and problem solving skills as well as engaging participants of diverse backgrounds. This educational model can potentially better keep pace with the emerging and quickly evolving landscape of biotech to better prepare young people for STEM careers and build the next generation of biotech and biomedical innovators.
Experience development will be conducted using an iterative design process that incorporates prototyping and formative evaluation to land on a final cohort of novel, highly-vetted Bio-Tinkering Playground experience. In the end, the project will generate a wealth of resources and learnings to share with the broader science education field. Thus, the impacts of our foundational work can extend well beyond the walls of The Tech as we enable other educators and public institutions around the world to replicate our model for engagement with biology.
Citizen science is a form of Public Participation in Scientific Research (PPSR) in which the participants are engaged in the scientific process to support research that results in scientifically valid data. Opportunities for participation in real and authentic scientific research have never been larger or broader than they are today. The growing popularity and refinement of PPSR efforts (such as birding and species counting studies orchestrated by the Cornell Lab of Ornithology) have created both an opportunity for science engagement and a need for more research to better implement such projects in order to maximize both benefits to and contributions from the public.
Towards this end, Shirk et al. have posted a design framework for PPSR projects that delineates distinct levels of citizen scientist participation; from the least to the highest level of participation, these categories are contract, contribute, collaborate, co-create, and colleagues. The distinctions among these levels are important to practitioners seeking to design effective citizen science programs as each increase in citizen science participation in the scientific process is hypothesized to have both benefits and obstacles. The literature on citizen science models of PPSR calls for more research on the role that this degree of participation plays in the quality of that participation and related learning outcomes (e.g., Shirk et al., 2012; Bonney et al., 2009). With an unprecedented interest in thoughtfully incorporating citizen science into health-based studies, citizen science practitioners and health researchers first need a better understanding of the role of culture in how different communities approach and perceive participation in health-related studies, the true impact of intended educational efforts from participation, and the role participation in general has on the scientific process and the science outcome.
Project goal to address critical barrier in the field: Establish best practices for use of citizen science in the content area of human health-based research, and better inform the design of future projects in PPSR, both in the Denver Museum of Nature & Science’s Genetics of Taste Lab (Lab), and importantly, in various research and educational settings across the field.
Aims
Understand who currently engages in citizen science projects in order to design strategies to overcome the barriers to participation that occur at each level of the PPSR framework, particularly among audiences underrepresented in STEM.
Significantly advance the current knowledge regarding how citizen scientists engage in, and learn from, and participate in the different levels of the PPSR framework.
Determine the impact that each stage of citizen science participation has on the scientific process.
Scientific facts can be so complicated that only specialists in a field fully appreciate the details, but the nature of everyday practice that gives rise to these facts should be understandable by everyone interested in science. This book describes how scientists bring their own interests and passions to their work, illustrates the dynamics between researchers and the research community, and emphasizes a contextual understanding of science in place of the linear model found in textbooks with its singular focus on "scientific method."
Everyday Practice of Science also introduces readers to
Science museums have made a concerted effort to work with researchers to incorporate current scientific findings and practices into informal learning opportunities for museum visitors. Many of these efforts have focused on creating opportunities and support for researchers to interact face-to-face with the public through, for example, speaker series, community forums, and engineering competitions. However, there are other means by which practicing scientists can find a voice on the museum floor—through the design and development of exhibits. Here we describe how researchers and museum
In 2012, the Science Museum of Minnesota (SMM) received funding from the National Institutes of Health (NIH) to develop an exhibition utilizing objects from the former Museum of Questionable Medical Devices (QMDs), contextualizing them in the greater conversation about scientific skepticism and how people make healthcare decisions. The resulting exhibition, Weighing the Evidence, opened in December 2015. This kt, object-based exhibition is organized into four islands of artifacts with accompanying information and hands-on “Try It” interactives, which allow visitors to experience some
Pacific Science Center (PSC) proposes Out of the Lab and Into the Spotlight (OLIS) a five-year project to bring current and fascinating information about health science research to Pacific Northwest audiences. Through a series of showcases that change content every six months the Research Focus Gallery will highlight cutting-edge local research. The Gallery a combined exhibit and program space will feature multimedia displays research artifacts hands-on exhibits and a presentation area where local researchers will communicate their work to visitors. An annual three-day research festival and monthly Science Cafes in three locations will complement the programs presented in the Gallery and will provide multiple venues for a variety of audiences to meet face-to-face with local researchers and learn about health science and related careers. Out of the Lab and Into the Spotlight will further the goals of the Science Education Partnership Award by 1) connecting the community to NIH-funded research and 2) increasing the awareness of young people in the Puget Sound region about careers in scientific research. An in-depth evaluation conducted by the external evaluator Center for Research Evaluation and Assessment will measure the effectiveness of the project in reaching the following outcomes: * The extent to which the program informs PSC visitors about the wide variety of NIH-funded research being performed in the region; specifically whether PSC visitors have an increased understanding of the various research areas presented. * The impact of the program on over 100 scientist participants; specifically scientists’ ability to communicate research ideas to the public and their interest in future participation. * The ability of PSC program developers to develop a future-ready space; specifically if the developed showcases and templates are adaptable to future content areas. The proposed project will draw upon our established relationships with local research organizations that together receive close to one billion dollars annually from NIH. The project leverages and deepens relationships that already exist between each of these institutions and PSC to enhance science learning in our community in novel ways. The primary audience for OLIS will be families and school groups ages eight and older drawn from over 800000 annual visitors. As a standalone element within the new Wellness exhibit due to open in 2011 we anticipate the Gallery will reach three to four million visitors during the grant period and up to five million additional visitors in the subsequent five years. PUBLIC HEALTH RELEVANCE (provided by applicant): Individuals need to obtain process and understand basic health information to make appropriate health decisions (Healthy People 2010). The proposed project Out of the Lab and Into the Spotlight will provide opportunities for the general public to increase their understanding of current health information and increase their awareness of cutting-edge research taking place in their own backyard. By engaging with research scientists in several venues the public will be exposed to NIH funded research and health science careers.
The Studio is a small change-ready exhibit space embedded within the Wellbody Academy, a 7,000 ft2 permanent exhibit on health and wellness. The Studio showcases up-to-date research on topics like genetics, epidemiology, and allergies and features the labs and work of scientists in the Seattle area.
The purpose of the cohort study was to provide objective feedback to exhibit developers as they experimented with finding the best balance of information and interactives for the space considering the time and budget available. This poster explains a bit about The Studio exhibits that were
People of color who live in low income, urban communities experience lower levels of educational attainment than whites and continue to be underrepresented in science at all educational and professional levels. It is widely accepted that this underrepresentation in science is related, not only to processes of historical exclusion and racism, but to how science is commonly taught and that investigating authentic, relevant science questions can improve engagement and learning of underrepresented students. Approaching science in these ways, however, requires new teaching practices, including ways of relating cross-culturally. In addition to inequity in science and broader educational outcomes, people of color from low income, urban communities experience high rates of certain health problems that can be directly or indirectly linked to mosquitoes. Recognizing that undertaking public health research and preventative outreach efforts in these communities is challenging, there is a critical need for an innovative approach that leverages local youth resources for epidemiological inquiry and education. Such an approach would motivate the pursuit of science among historically-excluded youth while, additionally, involving pre-service, in-service, and informal educators in joint participatory inquiry structured around opportunities to learn and practice authentic, ambitious science teaching and learning.
Our long-term goal is to interrupt the reproduction of educational and health disparities in a low-income, urban context and to support historically-excluded youth in their trajectories toward science. This will be accomplished through the overall objective of this project to promote authentic science, ambitious teaching, and an orientation to science pursuits among elementary students participating in a university-school-community partnership promise program, through inquiry focused on mosquitoes and human health. The following specific aims will be pursued in support of the objective:
1. Historically-excluded youth will develop authentic science knowledge, skills, and dispositions, as well as curiosity, interest, and positive identification with science, and motivation for continued science study by participating in a scientific community and engaging in the activities and discourses of the discipline. Teams of students and educators will engage in community-based participatory research aimed at assessing and responding to health and well-being issues that are linked to mosquitoes in urban, low-income communities. In addition, the study of mosquitoes will engage student curiosity and interest, enhance their positive identification with science, and motivate their continued study.
2. Informal and formal science educators will demonstrate competence in authentic and ambitious science teaching and model an affirming orientation toward cultural diversity in science. Pre-service, in-service, and informal educators will participate in courses and summer institutes where they will be exposed to ambitious teaching practices and gain proficiency, through reflective processes such as video study, in adapting traditional science curricula to authentic science goals that meet the needs of historically excluded youth.
3. Residents in the community will display more accurate understandings and transformed practices with respect to mosquitoes in the urban ecosystem in service of enhanced health and well-being. Residents will learn from an array of youth-produced, culturally responsive educational materials that will be part of an ongoing outreach and prevention campaign to raise community awareness of the interplay between humans and mosquitoes.
These outcomes are expected to have an important positive impact because they have potential for improving both immediate and long-term educational and health outcomes of youth and other residents in a low-income, urban community.
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TEAM MEMBERS:
Katherine Richardson BrunaLyric Colleen Bartholomay
San Francisco Health Investigators (SF HI), developed and led by the Science & Health Education Partnership at UC San Francisco, will use a community-based participatory research model to provide authentic research experiences for high school students, the majority from backgrounds underrepresented in the sciences.
SF HI will:
1) Develop a community of high school Student Researchers who will conduct research into health issues in their communities, study how adolescents respond to health messages, create new health messages informed by this research, and study the broader impacts of the materials they develop.
2) Partner with educational researchers to research the effects of SF HI on the high school student participants and the impact of the materials on the broader community.
3) Disseminate those materials shown to have the greatest impact nationally.
4) Publish results on the public understanding and awareness of health issues in peer-reviewed journals and other forums to inform and advance the field of public health.
The SF HI model is designed to leverage students’ cultural and technological knowledge and their social capital in the role of Student Researchers as they study the awareness, knowledge and attitudes about current health issues in their communities. It will have a broad range of impacts. Over the course of the project, 100 urban public high school students will be immersed in research projects that have the potential to directly benefit the health of their communities. These Student Researchers will design health messages informed by their social, cultural, and community knowledge and by their research results. They will collectively survey more than 8,500 community members – their peers, neighbors, and attendees at public gatherings to assess the effectiveness of these materials. Student-developed materials will be distributed broadly via the web, high school and college wellness centers, the NIH SEPA community, and other networks – thus these materials have the potential to reach over 1.5 million adolescents and young adults over the life of the project.