A report following the 2016 Environmental Health Summit recommended engaging citizens in creating their own knowledge and solutions, thus ensuring that their concerns are adequately addressed and promoting sustainability of community projects. Indeed, citizen science has the potential to initiate a cascade of events with a positive ripple effect that includes a more diverse future STEM and biomedical workforce. This SEPA proposal involves the establishment of WE ENGAGE – an informal, citizen science-based, environmental health experiential learning program designed in partnership with and for under resourced communities struggling with health and environmental health challenges. Its purpose is to actively engage and build the citizen science capacity of citizens living in a single cluster of three contiguous under resourced, minority Cincinnati neighborhoods where generational challenges continue to plague residents despite the presence of established academic-community partnerships. Our hypothesis is that community-informed, experiential learning opportunities outside of the classroom that are structured, multi-generational, and story-based will encourage a) the active asking, discussion about, and answering of relevant complex health and environmental questions so that individuals and communities can plan action steps to make better health choices and pursue healthier environments, and b) greater interest and confidence in pursuing formal biomedical/STEM education and STEM careers. Our program has three specific aims: 1) We will co-create tailored story- based (graphic novel style) STEM education materials with a community advisory board and offer informal STEM education and research training to our target communities; 2) we will facilitate the application of scientific inquiry skills to improve health via community-led health fairs that use an innovative electronic health passport platform to collect data and through facilitated community discussions of health fair data to generate motivating stories to share; and 3) we will facilitate the application of scientific inquiry skills to foster community pride and activism in promoting healthier/safer built environments via walking environmental assessments. As in aim 2, facilitated discussions will be held to spur future community based participatory research studies and interventions. Critical to our success is the concept of storytelling. Storytelling is a foundation of the human experience. A key purpose of storytelling is not just understanding the world, but positively transforming it. It is a common language. Bringing together STEM concepts in the form of a story increases their appeal and meaning. Later, the very process of community data collection gives individuals a voice. In a data story, hundreds to millions of voices can be distilled into a single narrative that can help community members probe important underlying associations and get to the root causes of complicated health issues relevant to their communities. Through place based, understandable, motivating data stories, the community’s collective voice is clearer—leading to relevant and viable actions that can be decided and taken together. From preventing chronic disease, to nurturing healthier environments, to encouraging STEM education — stories have unlimited potential.
Public Health Relevance Statement:
Narrative WE ENGAGE is an informal citizen science-based, experiential learning program designed in partnership with and for middle schoolers to adults living in under resourced minority communities. Using the power of data collection and storytelling, its purpose is to actively engage citizens in STEM/research education and training to encourage a more diverse future workforce and to sustainably build local capacity to ask and answer complex health and environmental questions relevant to their communities. Further, by engaging citizens and giving them a more equitable stake in the research process, they are better able to discover their own solutions.
DATE:
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TEAM MEMBERS:
Melinda Sue ButschkovacicSusan Ann Hershberger
Twin Cities PBS BRAINedu: A Window into the Brain/Una ventana al cerebro, is a national English/Spanish informal education project providing culturally competent programming and media resources about the brain’s structure and function to Hispanic middle school students and their families. The project responds to the need to eliminate proven barriers to Hispanic students’ STEM/neuroscience education, increase Hispanic participation in neuroscience and mental health careers and increase Hispanic utilization of mental health resources.
The program’s goals are to engage Hispanic learners and families by
empowering informalSTEM educators to provide culturally competent activities about the brain’s structure and function;
demonstrating neuroscience and mental health career options; and
reducing mental health stigma, thus increasing help-seeking behavior.
The hypothesis underpinning BRAINedu’s four-year project plan is that participating Hispanic youth and families will be able to explain how the brain works and describe specific brain disorders; demonstrate a higher level of interest of neuroscience and mental health careers and be more willing to openly discuss and seek support for brain disorders and mental health conditions.
To achieve program goals, Twin Cities PBS (TPT) will leverage existing partnerships with Hispanic-serving youth educational organizations to provide culturally competent learning opportunities about brain health to Hispanic students and families. TPT will partner with neuroscience and mental health professionals, cultural competency experts and Hispanic-serving informal STEM educators to complete the following objectives:
Develop bilingual educational resources for multigenerational audiences;
Provide professional development around neuroscience education to informal educators, empowering them to implement programming with Hispanic youth and families, and
Develop role model video profiles of Hispanic neuroscience professionals, and help partner organizations produce autobiographical student videos.
We will employ rigorous evaluation strategies to measure the project’s impact on Hispanic participants: a) understanding of neuroscience and brain health, particularly around disorders that disproportionately affect the Hispanic community; b) motivation to pursue neuroscience or mental health career paths; and c) mental health literacy and help-seeking behavior. The project will directly reach 72 Hispanic-serving informal STEM educators and public health professionals, and 200 children and 400 parents in underserved urban, suburban and rural communities nationwide.
The New York Hall of Science (NYSCI) will develop, test, market, and disseminate an interactive graphic novel iBook that will use the interests of young people (ages 10–14) in animals and comics to engage them in learning about health and clinical research. Provisionally called “Transmission: Astonishing Tales of Human-Animal Diseases,” the project represents a new approach to engaging young people in biomedical science learning.
Graphic novels are one of the fastest growing categories in publishing and bookselling, and today, they are significantly more sophisticated than the comics that came before them. They are also enormously popular among young people. The proposed graphic novel iBook will focus on the diseases that humans and animals share and pass between them (sometimes to devastating consequences), from Ebola, bird flu, and West Nile disease to influenza, measles, and pneumonia. Moreover, like many other contemporary graphic novels, it will address a pressing issue of the day—amely, the growth of zoonotic and anthropozoonotic diseases.
The iBook will be developed in a digital, interactive format (a growing trend within the genre) and, like many graphic novel titles, will take a mystery and forensic crime approach to exploring its content. Ultimately, Transmission will become a national model for conveying biomedical understanding through the use of up-to-the-minute interactive iBook technologies and an engaging graphic novel format.
For public health to improve, all sectors of society much have access to the highest quality health science news and information possible. How that information is translated, packaged and disseminated is important: the stories matter. Our journalism and mentoring program will grow the health science literacy of the nation by building the next generation of science communicators, ensuring that cadre of youth from historically disadvantaged groups have the discipline, creativity and critical thinking skills needed to be successful health science-literate citizens and advocates within their own communities.
Using a combination of youth-generated videos, broadcast reporting and online curriculum resources, PBS NewsHour will engineer successful educational experiences to engage students from all backgrounds, and particularly underserved populations, to explore clinical, biomedical, and behavioral research. The PBS NewsHour’s Student Reporting Labs program, currently in 41 states, will create 10 health science reporting labs to produce unique news stories that view health and science topics from a youth perspective. We will incorporate these videos into lesson plans and learning tools disseminated to the general public, educators and youth media organizations. Students will be supported along the way with curricula and mentorship on both fundamental research and the critical thinking skills necessary for responsible journalism. This process will ensure the next generation includes citizens who are effective science communicators and self-motivated learners with a deep connection to science beyond the textbook and classroom.
PBS NewsHour will develop a STEM-reporting curriculum to teach students important research skills. The program will include activities that expose students to careers in research, highlight a diverse assortment of pioneering scientists as role models and promote internship opportunities. The resources will be posted on the PBS NewsHour Extra site which has 170,000 views per month and our partner sites on PBS Learning Media and Share My Lesson—the two biggest free education resource sites on the web—thus greatly expanding the potential scope of our outreach and impact.
NewsHour broadcast topics will be finalized through our advisory panel and the researchers interviewed for the stories will be selected for their expertise and skills as effective science communicators, as well as their diversity and ability to connect with youth. Finally, we will launch an outreach and community awareness campaign through strategic partnerships and coordinated cross promotion of stories through social media platforms.