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resource project Public Programs
This Integrative Graduate Education and Research Training (IGERT) award supports the establishment of an interdisciplinary graduate training program in Cognitive, Computational, and Systems Neuroscience at Washington University in Saint Louis. Understanding how the brain works under normal circumstances and how it fails are among the most important problems in science. The purpose of this program is to train a new generation of systems-level neuroscientists who will combine experimental and computational approaches from the fields of psychology, neurobiology, and engineering to study brain function in unique ways. Students will participate in a five-course core curriculum that provides a broad base of knowledge in each of the core disciplines, and culminates in a pair of highly integrative and interactive courses that emphasize critical thinking and analysis skills, as well as practical skills for developing interdisciplinary research projects. This program also includes workshops aimed at developing the personal and professional skills that students need to become successful independent investigators and educators, as well as outreach programs aimed at communicating the goals and promise of integrative neuroscience to the general public. This training program will be tightly coupled to a new research focus involving neuro-imaging in nonhuman primates. By building upon existing strengths at Washington University, this research and training initiative will provide critical new insights into how the non-invasive measurements of brain function that are available in humans (e.g. from functional MRI) are related to the underlying activity patterns in neuronal circuits of the brain. IGERT is an NSF-wide program intended to meet the challenges of educating U.S. Ph.D. scientists and engineers with the interdisciplinary background, deep knowledge in a chosen discipline, and the technical, professional, and personal skills needed for the career demands of the future. The program is intended to catalyze a cultural change in graduate education by establishing innovative new models for graduate education and training in a fertile environment for collaborative research that transcends traditional disciplinary boundaries.
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TEAM MEMBERS: Kurt Thoroughman Gregory DeAngelis Randy Buckner Steven Petersen Dora Angelaki
resource project Exhibitions
Pacific Science Center (PSC) proposes Out of the Lab and Into the Spotlight (OLIS) a five-year project to bring current and fascinating information about health science research to Pacific Northwest audiences. Through a series of showcases that change content every six months the Research Focus Gallery will highlight cutting-edge local research. The Gallery a combined exhibit and program space will feature multimedia displays research artifacts hands-on exhibits and a presentation area where local researchers will communicate their work to visitors. An annual three-day research festival and monthly Science Cafes in three locations will complement the programs presented in the Gallery and will provide multiple venues for a variety of audiences to meet face-to-face with local researchers and learn about health science and related careers. Out of the Lab and Into the Spotlight will further the goals of the Science Education Partnership Award by 1) connecting the community to NIH-funded research and 2) increasing the awareness of young people in the Puget Sound region about careers in scientific research. An in-depth evaluation conducted by the external evaluator Center for Research Evaluation and Assessment will measure the effectiveness of the project in reaching the following outcomes: * The extent to which the program informs PSC visitors about the wide variety of NIH-funded research being performed in the region; specifically whether PSC visitors have an increased understanding of the various research areas presented. * The impact of the program on over 100 scientist participants; specifically scientists’ ability to communicate research ideas to the public and their interest in future participation. * The ability of PSC program developers to develop a future-ready space; specifically if the developed showcases and templates are adaptable to future content areas. The proposed project will draw upon our established relationships with local research organizations that together receive close to one billion dollars annually from NIH. The project leverages and deepens relationships that already exist between each of these institutions and PSC to enhance science learning in our community in novel ways. The primary audience for OLIS will be families and school groups ages eight and older drawn from over 800000 annual visitors. As a standalone element within the new Wellness exhibit due to open in 2011 we anticipate the Gallery will reach three to four million visitors during the grant period and up to five million additional visitors in the subsequent five years. PUBLIC HEALTH RELEVANCE (provided by applicant): Individuals need to obtain process and understand basic health information to make appropriate health decisions (Healthy People 2010). The proposed project Out of the Lab and Into the Spotlight will provide opportunities for the general public to increase their understanding of current health information and increase their awareness of cutting-edge research taking place in their own backyard. By engaging with research scientists in several venues the public will be exposed to NIH funded research and health science careers.
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TEAM MEMBERS: Diana Johns Meena Selvakumar Chris Cadenhead
resource research Media and Technology
Since opening their doors in late 2006, personal genomics (PG) companies have faced skepticism and criticism from influential academic and government circles. While this has posed a clear problem of communication for these companies — one of effective promotion — I argue that the communication problem these companies face runs much deeper. It is a problem that lies at the heart of any genomics: the very understanding of communication and information around which genomics is built. While the value of genomic information for persons has been widely questioned, questions about the very notion of
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TEAM MEMBERS: Jenny Reardon
resource research Media and Technology
Easy, cheap, efficient as online service often are. Direct to Consumer Genetic Testing (DCGT) represents a big evolution towards personalised medicine. If the phenomenon seems to be unstoppable, the first aim of its present and future developments should be the customers’ benefits. A certified quality of the services provided, a clear communication and a well-structured support to customers should be the critical conditions that could transform those online services in something really important: for the individual’s health and the society as a whole.
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TEAM MEMBERS: Donata Ramani Chiara Saviane
resource research Media and Technology
Since the early 2000s, anybody can buy genetic tests, directly sold on the Internet. These tests provide information about susceptibilities to some diseases and/or about ancestry. Thus, this article deals with a new e-market, whose scientific basis (validity of the tests) and status (as medical devices or consumer goods) are currently controversial. On one hand, we describe the tests and the advertisement and marketing strategies used by the companies (we made an inventory of about 40); on the other hand, we discuss several aspects on the basis of interviews conducted with users: first, the
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TEAM MEMBERS: Pascal Ducournau Claire Beaudevin
resource research Media and Technology
Personal Genomics Companies are an emerging form of biotechnology startup that bring rapidly advancing whole genome technologies to a variety of commercial venues. With a combination of direct-to-consumer marketing, social media, and Web 2.0 applications these companies seek to create novel uses, including entertainment, for what is described as predictive medicine – that is the use of genetic marketers to create health forecasts that would allow individual’s healthcare to be tailored to their individual genomic data. In this brief piece, the authors use a critical cultural approach to
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TEAM MEMBERS: Marina Levin Roswell Quinn
resource research Media and Technology
Direct-to-consumer (DTC) genetic testing has generated a great deal of social controversy. While the degree to which DTC testing actually causes harm remains uncertain, there is a consensus that the information provided by these companies should be accurate. Unfortunately, this is often not the case. Indeed, there are misrepresentations associated with all forms of testing, be it for superficial cosmetic services, athletic ability or disease predisposition. Countering this phenomenon will require a wide range of actions, including the use of formal regulatory mechanisms, the education of
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TEAM MEMBERS: Timothy Caulfield
resource research Media and Technology
Genetic testing promises to put the ability to decide about our life choices in our hands, as well as help solve crucial health problems by preventing the insurgence of diseases. But what happens when these exams are managed by private companies in a free market? Public communication and marketing have proven to be crucial battlefields on which companies companies need to engage in order to emerge. This issue of JCOM tries to shed some light on the communication and marketing practices used by private companies that sell direct-to-consumer genetic testing, from single genetic mutations to
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TEAM MEMBERS: Alessandro Delfanti
resource research Media and Technology
This paper compares opinion-leading newspapers’ frames of stem cell research in the UK and South Korea from 2000 to 2008. The change of news frames, studied by semantic network analysis, in three critical periods (2000-2003/2004-2005/2006-2008) shows the media’s representative strategies in privileging news topics and public sentiments. Both political and national identity represented by each media outlet play a crucial role in framing scientific issues. A news frame that objectifies medical achievements and propagates a popular hope evolves as a common discourse in The Telegraph and The
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TEAM MEMBERS: Leo Kim
resource research Professional Development, Conferences, and Networks
Regenerative medicine (RM) has the potential to strongly impact on society. To determine non-experts’ impressions of RM, we analyzed opinions obtained from workshops in which participants freely discussed RM. Three major features were apparent. First, non-experts were most concerned with the possible effects of RM after it has been fully realized in society. Second, non-experts expressed concerns not only about RM itself, but also about the governance and operation of the technology. Third, non-experts were not only concerned about direct influences of RM, but also about its potential indirect
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TEAM MEMBERS: Chie Nakagawa Ekou Yagi Kazuto Katu
resource project Public Programs
The National Science Festival Network project, also operating as the Science Festival Alliance, is designed to create a sustainable national network of science festivals that engages all facets of the general public in science learning. Science Festivals, clearly distinct from "science fairs", are community-wide activities engaging professional scientists and informal and K-12 educators targeting underrepresented segments of local communities historically underserved by formal or informal STEM educational activities. The initiative builds on previous work in other parts of the world (e.g. Europe, Australasia) and on recent efforts in the U.S. to create science festivals. The target audiences are families, children and youth ages 5-18, adults, professional scientists and educators in K-12 and informal science institutions, and underserved and underrepresented communities. Project partners include the MIT Museum in Cambridge, UC San Diego, UC San Francisco, and the Franklin Institute in Philadelphia. The deliverables include annual science festivals in these four cities supported by year-round related activities for K-12 and informal audiences, a partnership network, a web portal, and two national conferences. Ten science festivals will be convened in total over the 3 years of the project, each reaching 15,000 to 60,000 participants per year. STEM content includes earth and space science, oceanography, biological/biomedical science, bioinformatics, and computer, behavioral, aeronautical, nanotechnology, environmental, and nuclear science. An independent evaluator will systematically assess audience participation and perceptions, level/types of science interest stimulated in target groups, growth of partnering support at individual sites, and increasing interactions between ISE and formal K-12 education. A variety of qualitative and quantitative assessments will be designed and utilized. The project has the potential to transform public communication and understanding of science and increase the numbers of youth interested in pursuing science.
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TEAM MEMBERS: Loren Thompson Jeremy Babendure Ben Wiehe
resource evaluation Public Programs
In spring 2009, the Denver Museum of Nature & Science (Museum) contracted with JVA Consulting, LLC (JVA) to conduct a comprehensive process and outcome evaluation of the Passport to Health (P2H) program. The Museum designed P2H, originally a three-year program funded by the Colorado Health Foundation (the Foundation), to improve health outcomes for fifth-grade students as well as their families and teachers throughout the Denver metro area. Appendix includes survey.
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TEAM MEMBERS: JVA Consulting, LLC