A report following the 2016 Environmental Health Summit recommended engaging citizens in creating their own knowledge and solutions, thus ensuring that their concerns are adequately addressed and promoting sustainability of community projects. Indeed, citizen science has the potential to initiate a cascade of events with a positive ripple effect that includes a more diverse future STEM and biomedical workforce. This SEPA proposal involves the establishment of WE ENGAGE – an informal, citizen science-based, environmental health experiential learning program designed in partnership with and for under resourced communities struggling with health and environmental health challenges. Its purpose is to actively engage and build the citizen science capacity of citizens living in a single cluster of three contiguous under resourced, minority Cincinnati neighborhoods where generational challenges continue to plague residents despite the presence of established academic-community partnerships. Our hypothesis is that community-informed, experiential learning opportunities outside of the classroom that are structured, multi-generational, and story-based will encourage a) the active asking, discussion about, and answering of relevant complex health and environmental questions so that individuals and communities can plan action steps to make better health choices and pursue healthier environments, and b) greater interest and confidence in pursuing formal biomedical/STEM education and STEM careers. Our program has three specific aims: 1) We will co-create tailored story- based (graphic novel style) STEM education materials with a community advisory board and offer informal STEM education and research training to our target communities; 2) we will facilitate the application of scientific inquiry skills to improve health via community-led health fairs that use an innovative electronic health passport platform to collect data and through facilitated community discussions of health fair data to generate motivating stories to share; and 3) we will facilitate the application of scientific inquiry skills to foster community pride and activism in promoting healthier/safer built environments via walking environmental assessments. As in aim 2, facilitated discussions will be held to spur future community based participatory research studies and interventions. Critical to our success is the concept of storytelling. Storytelling is a foundation of the human experience. A key purpose of storytelling is not just understanding the world, but positively transforming it. It is a common language. Bringing together STEM concepts in the form of a story increases their appeal and meaning. Later, the very process of community data collection gives individuals a voice. In a data story, hundreds to millions of voices can be distilled into a single narrative that can help community members probe important underlying associations and get to the root causes of complicated health issues relevant to their communities. Through place based, understandable, motivating data stories, the community’s collective voice is clearer—leading to relevant and viable actions that can be decided and taken together. From preventing chronic disease, to nurturing healthier environments, to encouraging STEM education — stories have unlimited potential.
Public Health Relevance Statement:
Narrative WE ENGAGE is an informal citizen science-based, experiential learning program designed in partnership with and for middle schoolers to adults living in under resourced minority communities. Using the power of data collection and storytelling, its purpose is to actively engage citizens in STEM/research education and training to encourage a more diverse future workforce and to sustainably build local capacity to ask and answer complex health and environmental questions relevant to their communities. Further, by engaging citizens and giving them a more equitable stake in the research process, they are better able to discover their own solutions.
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TEAM MEMBERS:
Melinda Sue ButschkovacicSusan Ann Hershberger
The National Institutes of Health (NIH) awarded OMSI funding during the spring of 2011 to create a 2,000 sq. ft. bilingual (English/Spanish) traveling exhibition exploring current research on the human microbiome and the impact of our resident microorganisms on our health. The exhibition was developed with the support of the J. Craig Venter Institute and other national experts in microbiome research. More information about the exhibition can be found at http://omsi.edu/exhibitions/zoo-in-you/. The Zoo in You Project Goals are to (1) Educate museum visitors and program participants about what
The Oregon Museum of Science and Industry (OMSI), in partnership with the J. Craig Venter Institute (JCVI), proposes to develop the Zoo in You: Exploring the Human Microbiome, a 2,000 square foot bilingual (English and Spanish) traveling exhibition for national tour to science centers, health museums, and other relevant venues. The exhibition will engage visitors in the cutting edge research of the National Institutes of Health's (NIH) Human Microbiome Project (HMP) and explore the impact of the microbiome on human health. To enrich the visitor experience, the Zoo in You project will also produce an interactive bilingual website and in-depth programs including science cafes and book groups for adult audiences. JCVI will provide its expertise and experience as a major site for HMP genomics research to the project. In addition, advisors from the Oregon Health & Science University, Multnomah County Library, the Multnomah County Health Department, ScienceWorks Hands-On Museum, Science Museum of Minnesota, and other experts will guide OMSI's development of exhibits and programs. The Institute of Learning Innovation in collaboration with OMSI will evaluate the exhibits, programs, and website. Front-end, formative, remedial, and summative evaluation will be conducted in English and Spanish at OMSI, ScienceWorks, and tour venues. The exhibition's target audience is families and school groups with children in grades 4-12. Latino families are a priority audience and the project deliverables will be developed bilingually and biculturally. The Zoo in You will tour to three venues a year for a minimum of eight years. We conservatively estimate that over two million people will visit the exhibition during the national tour. This project presents a powerful opportunity to inform museum visitors about new discoveries in genomic research, to invite families to learn together, and to present and interpret health-related research findings for diverse audiences. PUBLIC HEALTH RELEVANCE (provided by applicant): Our research education program, the Zoo in You (ZIY): Exploring the Human Microbiome, is relevant to public health because it will inform exhibition visitors and program participants about the significant new research of the NIH's Human Microbiome Project (HMP). Visitors will make connections between basic research, human health, and their own personal experiences. The bilingual (English and Spanish) ZIY exhibits and programs will present research finding and public health information in enjoyable and engaging ways to reach diverse family and adult audiences.
Children's Hospital Oakland Research Institute (CHORI), in collaboration with the Hall of Health, a hands-on health museum, proposes a two year, Phase II SEPA project entitled Health and Biomedical Science for a Diverse Community. The purpose of this project is to disseminate (1) "Your Genes and Your Choices," a unique, interactive exhibit on social and genetic factors in health, and (2) a 4th and 5th grade health and biomedical science curriculum. The exhibit and curriculum were developed during Phase I. "Your Genes and Your Choices, "which has eight interactive stations and has been piloted at the Hall of Health, is designed for small science museums and health education centers. It will travel to four venues nationwide during Phase II and remain available to other venues after the grant ends. The innovative, activity based curriculum consists of eight instructional units that introduce students to scientific concepts and investigation in the context of the study of diseases and health conditions that disproportionately affect minority populations. The topics are: Fourth Grade: Unit 1: Nutrition: Balance and Imbalance (Obesity); Unit 2. Traumatic Brain Injuries; Unit 3. Infectious Diseases and Immunity; Unit 4. Environmental Toxics: Poisoning Prevention. Fifth Grade: Unit 1. Nutrition: Diabetes; Unit 2. Asthma and Lung Disease; Unit 3. Heart Disease; and Unit 4. Sickle Cell Anemia and Genetics. Each unit consists of five one hour lessons. The curriculum was piloted during Phase I, both in the classroom and in an after school science club, at two elementary schools serving predominantly minority children in Oakland, California. Now we propose to: (1) disseminate the curriculum via science clubs to ten elementary schools in Oakland and Berkeley; (2) offer a series of educator workshops to enhance the skills of teachers and after school personnel to teach scientific investigation and to incorporate the latest findings in biomedical science across the curriculum; and 3) hold family science festivals at each participating school to introduce parents to the topics of the science clubs. The festivals will include hands-on activities, talks by CHORI researchers, and focused discussions with healthcare providers on issues relating to minority health. This project involves clinical as well as basic science investigators, healthcare providers, teachers and health educators, high school and college students, and faculty from San Francisco State University and the University of California at Berkeley. The ultimate goals are to make science interesting and relevant to children who come from ethnically diverse, low income environments; to help them meet state and national objectives for learning in health, science, and scientific inquiry; to help them and their parents understand the relationship between science and health; and to foster their interest in science, so that they may consider future careers related to biomedical science. All project activities will be assessed through formative and summative evaluation. The science clubs will remain in place at the ten participating schools after Phase II funding ends, and the curriculum and evaluation tools will be posted on the internet, and thereby available to others.
Children's Hospital Oakland Research Institute (CHORI), in collaboration with the Hall of Health, a hands-on health museum, proposes a three-year Phase I SEPA project entitled "Health and Biomedical Science for a Diverse Community." The project entails development of a novel, interactive biomedical science curriculum for 4th and 5th grade students in low socioeconomic environments. Complementary to the curriculum, a hands-on exhibit on social and genetic factors in health will be developed to enhance learning by students and families. The curriculum and exhibit will be pilot tested with students from two elementary schools in Oakland, California. The curriculum--which will specifically address minority health issues such as asthma, obesity, diabetes, and heart disease--will include four five-lesson instructional units for 4th grade, and four five-lesson instructional units for 5th grade. In addition to classroom activities, the project will include workshops for teachers, family health and biomedical science nights, field trips to the Hall of Health, and an annual health and biomedical science festival for families. The project will involve clinical as well as basic science investigators, patients and families, and high school and college students. It will draw on the talents of teachers and health educators from the Oakland Unified School District, directors of SEPA projects at the Exploratorium in San Francisco and Lawrence Hall of Science in Berkeley, faculty at San Francisco State University and the University of California at Berkeley, and employees of LeapFrog, Inc., a company located in Emeryville, California, that makes interactive educational products. The ultimate goals of the project are to make science interesting and relevant to children who come from ethnically diverse, low socio-economic environments, to help them and their parents understand the relationship between science and health, and to foster their interest in science so that they may consider future opportunities in careers related to biomedical science. All project activities will undergo front-end, formative, and summative evaluation.
The National Center for Interactive Learning (NCIL) at the Space Science Institute (SSI), in collaboration with the Colorado Clinical and Translational Studies Institute (CTSCI), and Colorado Area Health Education Centers (AHECs), requests support for Discover Health/Descubre la Salud (DH/DS). The bilingual (English/Spanish) project will include an interactive library exhibit supported by media and community education resources to engage underserved communities in learning about their cardiovascular and digestive systems, and how to keep them healthy. The project will target underserved communities, including rural and Latino communities, working through libraries and community institutions. The project will use a strategic combination of bilingual, interactive exhibits presented at libraries and community health fairs and festivals, career events, family nights, science camps, and mini-med schools, to engage students, families, and adults in these important health issues. Project PI Robert Russell, Senior Education Associate at NCIL, and NCIL Founder Co-PI Dusenbery, Founder of NCIL, will direct the project. Dr. Jack Westfall, who will direct the Community Engagement Core of CCTSI and also directs Colorado AHECS, he will direct their subaward. An outstanding advisory committee includes biomedical researchers, community health educators, librarians, and informal science educators. They will provide expertise on biomedical science content and help guide the project's implementation. Knight Williams, Inc., a highly experienced media and community evaluation firm, will conduct the full required project evaluation.
The Self-Reliance Foundation (SRF) Conociendo Tu Cuerpo (Know Your Body) Hispanic Community Health Sciences Education project is an initiative designed to introduce Hispanic students and families to biomedical science and health education resources, and increase their participation levels in these fields. The educational goals of the project are to: (1) Encourage Hispanic undergraduate students to pursue careers in biomedicine and science through a mentoring program at the university level; (2) Inspire an interest in biomedical science among Hispanic elementary-age students and parents through community outreach activities; (3) Inform Hispanic parents about biomedical science education standards and academic requirements for pursuing biomedical and science related careers; and (4) Inform and inspire Hispanic students and their families about the biomedical sciences and related careers through a series of daily nationally broadcast Spanish-language radio capsules, and a nationally syndicated Spanish newspaper column. Conociendo Tu Cuerpo (Know Your Body) includes several key components: A model, Washington, D.C., area coalition of informal science, health, community, education, and media organizations that will publicize and provide hands-on health science activities at community festivals and other community settings; Hispanic undergraduate student health-science fellows to be trained and provided experience in facilitating health science activities; and nationally broadcast Spanish-language radio capsules that will cover topics in areas of biomedicine, research, education, and health-science careers. Parents and students will be able to access additional information about biomedical science opportunities and Hispanic role models in the biomedical sciences through the project's Conociendo Tu Cuerpo website and the bilingual 800 telephone help line promoted by 147 participating radio stations and 102 newspapers nationwide. The project will be supported at the national level through collaboration with the Hispanic Radio Network and the Pacific Science Center. The Washington, D.C., collaborative will include the Capital Children's Museum, local Spanish language radio stations, area universities, and health and community organizations. Development Associates, the largest American education and evaluation consulting corporation, will evaluate the project.